
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
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Neuromuscular Mystery Case Rounds
Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to Neuromuscular Mystery Case Rounds. This case-based rounds webinar is for Canadian clinicians, […]
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PxP 2025 Webinar Series. The patient perspective: Barriers and facilitators to patient partnership in research
The webinar series is all about patient engagement in health research, also known as patient and public involvement (UK) or consumer involvement (Australia). It is worth mentioning that ‘patient engagement’ […]
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Rare Disease Expertise, Centers & Networks: Results of the Public Survey
This is a Public Webinar presenting the results of RDI Survey on rare disease expertise, care-providing centers and networks. This survey aimed to map the global landscape of rare disease expertise, […]
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From Grassroots to Global: Growing Momentum Towards a WHA Resolution on Rare Diseases
Join RDI for a webinar on the global movement behind the efforts to advocate for a WHA Resolution on Rare Diseases
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Rare Moments: Virtual Storytelling Evening
Don’t miss Rare Moments: Virtual Storytelling Evening 📅 February 27 @ 7:00 p.m. ET Register: https://bit.ly/4ht5Ox9 It will be an inspiring evening of storytelling as families from across #Canada come […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!