12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Virtual
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CIHI-Foundations of Patient Partnering Virtual Sessions
Calling all patient and family partners! Are you interested in attending a training session to learn about foundational patient engagement concepts, participate in skill-building activities, and network with other patient […]
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ACT Canada Webinar Series: Engaging patient partners in your CIHR grant application: Everything you ever wanted to know with Maureen Smith & Andrea Chow (Ontario)
Learning Objectives: Review the ways in which patients can contribute as partners on your CHIR grant application Identify the challenges and barriers to patients in fulfilling grant application requirements and […]
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TREAT-NMD Myotonic Dystrophy Type 1 (DM1) Expert Masterclass
Registrations are now open for our virtual DM1 Expert Masterclass on 16th January 2025, chaired by Nicholas Johnson and Benedikt Schoser. This event is designed for healthcare providers involved in […]
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Webinar – Securing Funding for Clinical Trials
Webinar objectives: Identify various funding strategies for pediatric and perinatal clinical trials in Canada, including academic grants and industry partnerships. Develop realistic expectations regarding the timeline and effort required to fund clinical trials through shared […]
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Challenges in the Diagnosis and Treatment of Inflammatory Neuropathies
Delivered by Dr. Filip Eftimov (University Medical Center of Amsterdam, the Netherlands) & Jean-Philippe Plançon (EPODIN – European Patient Organisation for Dysimmune and Inflammatory Neuropathies, France), January 23rd 2025 at […]
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CIHI-Foundations of Patient Partnering Virtual Sessions
Calling all patient and family partners! Are you interested in attending a training session to learn about foundational patient engagement concepts, participate in skill-building activities, and network with other patient […]
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Building Bridges: Essential Supports for Children with Disabilities and Their Families in Schools, Healthcare, and Community
What do children with disabilities and their families need to thrive? A team of researchers, mothers, and children and youth with disabilities set out to answer this question by exploring their experiences […]
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Neuromuscular Mystery Case Rounds
Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to Neuromuscular Mystery Case Rounds. This case-based rounds webinar is for Canadian clinicians, […]
Share your Event
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Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!