Brain-Heart Interconnectome (BHI) State of the Science Summit
The summit is an international conference meant to highlight the latest science at the crossroads of brain and heart health, showcasing innovation and state-of-the-art research.
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Research Focused
Events
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Muscular Dystrophy Canada- Working Together to Build E-Learning in Rare Neuromuscular Diseases: Lessons from Arthrogryposis
Muscular Dystrophy Canada is excited to host a webinar on building e-learning in rare neuromuscular diseases. The objectives of this session are as follows: Recognize the key principles of knowledge co-development, including respectful partnerships between people with arthrogryposis multiplex congenita (AMC), families, clinicians, researchers, and organizations. Understand the value of multidisciplinary teams that include people […]
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Building on Progress: Charting the Future of Canada’s Rare Disease Strategy
Leading experts and advocates will convene to discuss the critical insights, challenges, and opportunities in advancing Canada's National Rare Disease Strategy. Drawing upon key findings from a recent national study, panelists will delve into the economic burden, the profound impact of delayed diagnosis on patient journeys, and the imperative for improved pathways, access, and research. […]
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RareKids-CAN Advanced Therapy Medicinal Products (ATMPs) series: ATMP Webinar: A Practical Primer for Clinical Coordinators, Nurses & Pharmacists
Designed for clinical coordinators, nurses, pharmacists, and research staff working in pediatric rare disease trials, this introductory session will provide a practical overview of: 🔹 Gene therapies, cell therapies, and antisense oligonucleotides (ASOs) 🔹 How ATMPs differ from traditional therapies 🔹 Key operational considerations for clinical teams 🔹 Strategies for explaining ATMPs in clear, accessible […]
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‘Neuro-opthalmological presentations of ataxia and other rare neurological disorders’ by Tatiana Brémovà-Ertl
Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
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Cystic Fibrosis Canada’s 2026 Webinar: Spotlight on CF Research 2026
Register now for Cystic Fibrosis Canada's 2026 Spotlight on CF Research Webinar, offered in English and French with live simultaneous interpretation.
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CORD Webinar: From Genomic Testing Readiness to Rare Disease System Readiness
Join Durhane Wong-Rieger (CORD) and Don Husereau (University of Ottawa) for a discussion on moving from genomic testing readiness to rare disease system readiness and shaping the next phase of Canada’s Rare Disease Strategy
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ERDERA Clinical Trial Call 2026: Information Webinar
ERDERA will host an informational webinar on 6 July 2026. During this session, participants will have the opportunity to hear directly from ERDERA experts, who will present the objectives, scope, and requirements of the call, and address questions from prospective applicants.
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CIHR: Information Webinar for Canadian applicants to the ERDERA Clinical Trial Call 2026
CIHR is hosting an information session to provide interested Canadian applicants with information on the requirements of the “ERDERA Clinical Trial Call 2026 (ECTC 2026)” funding opportunity and to answer questions on how to apply.
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HERE!