Global Genes: RARE Drug Development Symposium
Join Global Genes virtually from September 9 – 11, 2026 and access high-impact sessions directly from your home or office. What’s included in the Live Stream: 2 Fireside Chats 6 […]
11 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Research Focused
Events
-
-
-
Cavernous Malformation Canada Clinical & Scientific Symposium
Hosted by the driven team at Cavernous Malformation Canada (CMC) and their Clinical and Scientific Advisory Board, the 2026 Cavernous Malformation Clinical and Scientific Symposium will be informative not only […]
-
Cavernous Malformation Canada Patient & Family Conference
Join Cavernous Malformation for an educational two-day patient and family conference featuring expert speakers, interactive opportunities between patients and clinicians, and meaningful moments of connection and sharing with others impacted […]
-
SickKids: Neurovascular Family Education Day 2026
Please join SickKids for an educational event for patients, families, and care-givers featuring expert speakers on Moyamoya Disease.
-
Regroupement Quebecois des Maladies Orphelines (RQMO) Educational Day 2026
This year, the RQMO Educational Day will be held at the Travelodge Hotel in Quebec City (3125 Hochelaga Boulevard) and will have the theme "The impacts of rare diseases – […]
-
Sickle Cell Awareness Group of Ontario (SCAGO): Sickle Cell Awareness Month Community Engagement in Thunder Bay
SCAGO is excited to bring our first-ever Sickle Cell Awareness Month Community Event to Thunder Bay in collaboration with NorWest Community Health Centres (CHC)! Join SCAGO for an afternoon of […]
-
Pulmonary Hypertension Association Canada’s PH Community Conference & Scientific Sessions
🔬 Thursday, September 24 CPHPN and CaPH-Net meetings (by invitation) and the Scientific Sessions Opening Reception. Primarily for healthcare professionals, researchers, and invited network members. 🩺 Friday, September 25 Scientific […]
-
17th International Symposium on Sjögren’s Disease
This prestigious event, which brings together researchers, physicians, patients and experts from around the world to discuss the latest advancements in Sjögren's disease.
-
-
Defeat Duchenne Canada: Family Forum 2026
Hosted in partnership with IWK Health Centre and the Stan Cassidy Centre for Rehabilitation, this year’s Family Forum is designed to be a destination experience for the Duchenne community. Families from across Canada […]
-
Kids Brain Health Network (KBHN) Annual Conference
Save the Date! Kids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference, happening October 18–20, 2026, in Calgary, Alberta!
-
-
Inaugural Canadian Gene & Cell Therapy Conference
Convened by RareKids-CAN in partnership with the Conference Organizing Committee, the conference will bring together researchers, clinicians, manufacturers, industry leaders, regulators, trainees, and patient and family partners from across the […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!