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Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Research Focused
PxP 2024 Conference (For Patients, By Patients)
Standing for ‘For Patients, By Patients’, PxP 2024 is entirely led by an international team of patient and public partners and is a Patients Included™ event. Our purpose is to […]
31st European Paediatric Rheumatology
Sweden Gothenburg, SwedenAs always at PReS meetings, the invited faculty represents internationally renowned clinicians and scientists who will present and discuss significant and exciting developments in pathophysiology, diagnostics, and clinical management of […]
Designing effectiveness-implementation hybrid trials in child health research
The webinar will introduce effectiveness-hybrid designs, showcase examples, and outline important considerations for conducting these types of studies. It will also briefly summarize tensions that may occur in conducting implementation […]
Global Alliance for Genomics and Health – 12th Plenary
Park Hyatt Melbourne Melbourne, AustraliaGA4GH 12th Plenary brings together organisations and initiatives from the genomics and health community for keynotes, talks, and workshops. The conference will focus on genomic and clinical data sharing issues […]
EMPOWER & INSPIRE 3RD ANNUAL LEIGH SYNDROME SYMPOSIUM
Empower & Inspire: Understanding and Accelerating Research for Leigh Syndrome Tuesday, September 17, 2024 Brought to you by: Cure Mito Foundation & integrative Cardiovascular Metabolism and Pathophysiology Laboratory (iCaMP) at […]
RITA Patient-Centered: Risk of Infection and Immunological Rare Diseases
Join the webinar "Risk of Infection and Immunological Rare Diseases," featuring Dr. Laia Alsina, MD, PhD, Chief of the Clinical Immunology and Primary Immunodeficiencies Reference Unit at Hospital Sant Joan […]
Rare Disease Day 2025 webinar: Enhancing Accessibility in Physical and Digital Spaces
Join on 18 September at 2 pm (CEST, UTC+2) for our Rare Disease Day Webinar, “Enhancing Accessibility in Physical and Digital Spaces.” Discover innovative strategies for making environments more inclusive […]
IPNA Webinar: Chronic kidney disease care in low resource settings: Can we make it a smooth ride for children?
The webinar will discuss the challenges and barriers to optimal pediatric CKD care in low-resource settings and invite experts to discuss potential solutions to address the inequities in care. The […]
Webinar – Clinical trials across the lifespan: Considerations for trials with pregnant people and children
Webinar objectives: 1. Identify reasons why more clinical trials should include children and pregnant people 2. Describe additional considerations for designing, operating, and communicating about clinical trials with pregnant people […]
CHAEN / International Guideline Conference
Hilton Hotel Toronto Toronto, Ontario, CanadaThe Canadian Hereditary Angioedema Network (CHAEN) is an organization of physicians who treat and/or are interested in Hereditary Angioedema. CHAEN is incorporated under the Canada Not-For-Profit Corporations Act. CHAEN unites […]
‘Clinical neurophysiology in dystonia’ by Anke Snijders
Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of […]
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