Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Research Focused
Events
-
-
-
‘Neuro-opthalmological presentations of ataxia and other rare neurological disorders’ by Tatiana Brémovà-Ertl
Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of […]
-
-
Cystic Fibrosis Canada’s 2026 Webinar: Spotlight on CF Research 2026
Register now for Cystic Fibrosis Canada's 2026 Spotlight on CF Research Webinar, offered in English and French with live simultaneous interpretation.
-
CORD Webinar: From Genomic Testing Readiness to Rare Disease System Readiness
Join Durhane Wong-Rieger (CORD) and Don Husereau (University of Ottawa) for a discussion on moving from genomic testing readiness to rare disease system readiness and shaping the next phase of […]
-
-
-
IMPaCT Webinar-Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials
Register today for IMPaCT's next webinar with Ami Baba, PhD, where she'll discuss Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials. ✅ Identify who needs trial reporting […]
-
Sickle Cell Awareness Group of Ontario-Annual Summit 2026 Registration
Join SCAGO for an educational two-day summit bringing together researchers, clinicians, advocates, and community members all working to transform sickle cell care.
-
Kabuki Syndrome Foundation Live Webinar: Together for Progress
Join the Kabuki Syndrome Foundation at their upcoming live webinar, Together for Progress, on July 16, 2026. You can look forward to the latest updates on treatment development, learn about […]
-
RareKids-CAN-Delivering Gene Therapy Trials: Understanding Clinical Workflows, Operations, and the Patient Journey
Join RareKid-CAN on July 22nd for their second webinar in our ATMP series for research coordinators, nurses, pharmacists, investigators, and other clinical research professionals. Their speaker Ana Stosic will provide […]
-
-
RareKids-CAN-Kids Rare Disorders Awareness: Supporting Early Recognition & Families in Nova Scotia
Join RareKids-CAN Clinical Trial Navigator Ameen Abdelmajid of the IWK Health for a series of community information sessions in partnership with Halifax Public Libraries. These free sessions are designed for […]
-
-
Cavernous Malformation Canada Clinical & Scientific Symposium
Hosted by the driven team at Cavernous Malformation Canada (CMC) and their Clinical and Scientific Advisory Board, the 2026 Cavernous Malformation Clinical and Scientific Symposium will be informative not only […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!