
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Research Focused
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Ehlers-Danlos Society ECHO Summit: Mental Health
The Ehlers-Danlos Society is delighted to welcome you to register for the EDS ECHO Summit: Mental Health, a virtual event held on November 1, 2025. This event is suitable for […]
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Canadian Caregiving Summit 2025
A brighter future of care is possible. Following the release of A National Caregiving Strategy for Canada, the Canadian Caregiving Summit, hosted by the Azrieli Foundation’s Canadian Centre for Caregiving […]
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Screen4Rare: Making AI Diagnosis Understandable
A co-creation workshop inviting non-AI experts to help design communication tools such as videos and brochures that make AI-supported diagnosis more understandable, trustworthy and human.
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Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME)
This will include presentations and panel discussions focused on current scientific findings, the opportunities to strengthen research design, and the need to create more inclusive and accessible research spaces.
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Webinar: Health Financing & Social Health Protection for Rare Diseases
Rare Diseases International (RDI) and the P4H Network have partnered to enable global advocacy and collaboration to influence and support innovation in health financing arrangement and social health protection that […]
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IPIC 2025
IPIC is one of the leading international congresses on primary immunodeficiency (PID) diagnosis and clinical care with a unique approach to its scientific programme underpinned by its focus on patient-centredness. […]
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The McMaster Immune Thrombocytopenia (ITP) Summit 2025
By attending this activity, participants will be able to: Compare the clinical and laboratory features of Immune Thrombocytopenia (ITP) and Warm Autoimmune Hemolytic Anemia (WAIHA). Evaluate current and emerging therapeutic […]
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2025 Canadian Fragile X Conference
November 7–8, 2025 | Toronto, Ontario Canada’s first national Fragile X conference
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TSF’s Toronto Patient Day for Rare Neuroinflammatory Disorders
TSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Canada to join us!
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42nd International Conference on Advances in Psychiatry and Mental Health
This premier event will bring together leading experts, researchers, and mental health professionals to explore innovative approaches and emerging trends in the field of psychiatry. Psychiatry Conference 2025 cordially invites all psychiatrists, […]
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ISCT North America Regional Virtual Town Hall
Join ISCT on November 10 for an engaging Town Hall discussion on the real-world implementation of gene therapy for sickle cell disease (SCD). The session will be led by Dr. […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!