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Events

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.

Watch our walkthrough videos in English and French for guidance navigating the calendar HERE. 

21st Biennial ESID Meeting

france Marseille, France

The ESID 2024 meeting in Marseille will cover the latest most exciting discoveries in basic and clinical science covering our expanding field, bringing together internationally renowned scientists and clinicians to present and […]

EPNS Research Meeting 2024

The EPNS has been organising Research Meetings since 2008. With an aim to enhance research in Paediatric Neurology, the meeting brings together leaders in the field, active researchers and young […]

RQMO Educational Day 2024

The 2024 RQMO educational day will focus on a theme that affects many families who have a child with a rare disease: The transition to adulthood of children with differences.

#ChildHealthCan2024

St.Johns, Newfoundland 50 New Gower Street, St.Johns, Newfoundland, Canada

Children’s Healthcare Canada and co-hosts, the Janeway Children's Hospital Foundation and NL Health Services, invite you to join us in picturesque Newfoundland and Labrador from October 20-22, at the St. […]

World Orphan Drug Congress 2024

Fira de Barcelona Montjuic Barcelona, Spain

The World Orphan Drug Congress is the largest, most established European meeting dedicated to orphan drugs. This year the conference will take place in Barcelona, Spain. From cell & gene […]

Update on treatment in Pompe disease

Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to a webinar on treatment updates in Pompe disease. This case-based rounds webinar […]

Epilepsy Treatments in Rett Syndrome

The International Rett Syndrome Foundation (IRSF) invites you to this live RettEd session with a goal of educating families on an approach to the treatment of epilepsy in Rett syndrome

Share your Event

Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!

Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details

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