
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Provincial
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Child Health Hub in Transition to Adult Healthcare
The Child Health Hub in Transition to Adult Healthcare is excited to be hosting the 2nd Transition to Adulthood Pop-Up event on December 2-3, 2023, at the beautiful Hyatt Regency […]
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Spinal Muscular Atrophy Outcome Measures Workshop (English Language)
Le Centre Sheraton Montreal Montreal, Quebec, CanadaEarlier this year, NMD4C, MDC and Quebec SMA Network hosted the first interactive training session for French-speaking physiotherapists and occupational therapists on assessment measures and practices for Spinal Muscular Atrophy (SMA). […]
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Rare Disease Day and World Birth Defects Symposium
Join on February 28, 2025, for the Rare Disease Day and World Birth Deficit Symposium, an event dedicated to raising awareness and fostering meaningful discussions on the challenges faced by […]
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Rare Disease Day 2025 by McGill’s RareDIG
McGill’s RareDIG is excited to welcome you to their seventh edition of Rare Disease Day! Students, researchers, physicians, patients, and community members, including the RQMO, will meet at Jeanne Timmins […]
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Understanding what matters to children and families: The socioeconomic impact of childhood arthritis
This presentation will share findings from the Health Economics research lead by Dr. Marshall as part of the international UCAN CAN-DU and CURE research program on childhood arthritis.
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Child Health and Wellness Seminar: Discovery Series: Understanding Mental Health and Neurodiversity Through Systems Neuroscience
Understanding and supporting mental health and neurodiversity requires insight into the brain systems that regulate attention, motivation, mood and thought. Dr. Gruber’slab studies the brain’s role in these functions and […]
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Limb-Girdle Muscular Dystrophy Masterclass
Are you involved in diagnosing or managing Limb-Girdle muscular dystrophy (LGMD)? This April 2025, join TREAT-NMD™ in Montreal, Canada, for an in-person educational event designed for healthcare professionals in the […]
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FSHD 360 Conference
FSHD research and drug development is in a new era. Do you know what’s happening and how this might impact your life? Here’s your chance to hear from the research […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!