Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Join on 24 July for a free webinar and explore how ethics applies across different research activities, illustrated through a real-world case study that brings the concepts to life.
Join CORD for an interactive 60-minute indicator lab exploring how Canada can measure progress in rare disease readiness. Together, experts and participants will examine and rate key policy and delivery […]
Final Webinar in CORD’s 4-Part Summer Rare Disease Readiness Series
Join SCAGO for an educational two-day summit bringing together researchers, clinicians, advocates, and community members all working to transform sickle cell care.
Hosted by the driven team at Cavernous Malformation Canada (CMC) and their Clinical and Scientific Advisory Board, the 2026 Cavernous Malformation Clinical and Scientific Symposium will be informative not only […]
Join Cavernous Malformation for an educational two-day patient and family conference featuring expert speakers, interactive opportunities between patients and clinicians, and meaningful moments of connection and sharing with others impacted […]
Please join SickKids for an educational event for patients, families, and care-givers featuring expert speakers on Moyamoya Disease.
This year, the RQMO Educational Day will be held at the Travelodge Hotel in Quebec City (3125 Hochelaga Boulevard) and will have the theme "The impacts of rare diseases – […]
This prestigious event, which brings together researchers, physicians, patients and experts from around the world to discuss the latest advancements in Sjögren's disease.
Hosted in partnership with IWK Health Centre and the Stan Cassidy Centre for Rehabilitation, this year’s Family Forum is designed to be a destination experience for the Duchenne community. Families from across Canada […]
Convened by RareKids-CAN in partnership with the Conference Organizing Committee, the conference will bring together researchers, clinicians, manufacturers, industry leaders, regulators, trainees, and patient and family partners from across the […]
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
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