RQMO: 3rd Zebinary of the Month of Zebra 2026
3rd Zebinary of the Month of Zebrier 2026 Speaker: - David Cohen, Professor, Faculty of Health, Sorbonne University, Paris, France
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Policy
Events
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8th TREAT-NMD® International Conference – Lisbon, 2026
Join TREAT-NMD at this vital, in-person gathering where patients, clinicians, researchers, industry, and regulators come together to tackle the biggest challenges in neuromuscular treatment development, diagnosis and care. Topics will […]
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Community Engagement Series Event: From Intent to Impact: Evaluating Patient Engagement Within a Rare Disease Pediatric Network
Join the upcoming Community Engagement Series event: From Intent to Impact: Evaluating Patient Engagement Within a Rare Disease Pediatric Network. Hear from Maureen Smith🇨🇦 and Beth Potter about how to […]
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RealiseD Webinar 4: Enhancing patient-centricity in Rare Disease Clinical Trials
The final webinar focuses on what truly matters: the patient. Rare disease trials often struggle to capture outcomes that reflect patient priorities but RealiseD is working to change that. Rudradev […]
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RQMO: 4th Zebinary of the Month of Zebra 2026
Speaker: - Jacques P. Tremblay, Ph.D, Full Professor, Department of Molecular Medicine, Faculty of Medicine, Université Laval
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RQMO: 5th Zebinary of the Month of Zebra 2026
Speakers: - Christine Yergeau, Msc, RARE Network Manager. QC - Lilit Antonyan, Research Pillars Coordinator at RARe.qc
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Cassie&Friends: Rare Talks-When Answers Take Time: Real Lives, Rare Disease, and Support That Matters
Held during Rare Disease Month, this annual virtual event brings together families, youth, and the broader childhood rheumatic disease community to make rare experiences visible—and to remind families that they are […]
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RQMO: 6th Zebinary of the Month of Zebra 2026
Speaker: - Josée Chénard, TS, PH.d, Professor, Department of Social Work, Université du Québec en Outaouais
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Rare Disease Day 2026: Advancing the Rare Brain Disease Ecosystem
Placing brain health at the core of rare brain disease prevention and management, this event gathers multidisciplinary experts from research, clinical care, patient advocacy, and industry to share perspectives and […]
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PhenoTips: Matchmaking for Rare Disease Diagnosis
Matchmaking for Rare Disease Diagnosis is a panel discussion and interactive Q&A with patient matchmaking pioneers, Dr. Nara Sobreira, Matthew Osmond, CGC, and Dr. Orion Buske.
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RQMO: Last Zebinary of the Month of Zebra 2026
Speaker: - François Bernier, entrepreneur, strategist, co-founder of Horizon b2b
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EP PerMed Hackathon
This is your chance to be a part of an immersive event at the forefront of innovation in personalised medicine. Join ER PerMed and work together with experts, innovators, and […]
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