2025 Canadian Fragile X Conference
November 7–8, 2025 | Toronto, Ontario Canada’s first national Fragile X conference
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Policy
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ISCT North America Regional Virtual Town Hall
Join ISCT on November 10 for an engaging Town Hall discussion on the real-world implementation of gene therapy for sickle cell disease (SCD). The session will be led by Dr. […]
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Pan-Canadian OMOP Common Data Model Engagement Event
This pan-Canadian event brings together teams using the OMOP common data model to advance research collaboration across Canada and beyond.
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ITINERARE Symposium 2025
The programme features experts from a variety of fields, ranging from basic and translational research to clinical application and the ethical, social and legal aspects of rare disease research.
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Introduction to the Disability Tax Credit
A presentation about the gateway tax credit and the benefits it unlocks: Learn how the credit works and who qualifies Learn how the credit unlocks other federal benefits Discover practical […]
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CARELeuko Symposium 2025
The Canadian Association for Research Excellence in Leukodystrophy (CARELeuko) is excited to welcome you to the 2025 CARELeuko Symposium: Uniting Canada's Leukodystrophy Community to Drive Collaboration and Accelerate Research and […]
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36th International Symposium on ALS/MND
The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year they bring together researchers from around the world to share new understanding of amyotrophic […]
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2nd International Conference on Clinical Research Networks (CRNs) for Rare Diseases
This second edition will convene a wide range of international experts, including researchers, clinicians, patient advocates, industry representatives, policymakers, and funders to strengthen the collaborative ecosystem that underpins clinical research […]
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SMA Together: Learn. Share. Connect. A Mini-Regional Conference – Toronto
The SMA Together: Learn. Share. Connect. Mini-regional conference in Toronto is less than three weeks away! Join them, in-person on December 13 to learn about the latest updates in spinal […]
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ERDERA: Joint Transnational Call 2026
This information webinar on the 2026 Joint Transnational Call for Proposals is scheduled for 16 December 2025, 15:00–17:00 CET, focusing on resolving unsolved rare genetic and non‑genetic diseases.
Share your Event
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HERE!