The World Orphan Drug Congress
The World Orphan Drug Congress is the largest and most established orphan drug & rare disease meeting of its kind across the globe. From cell and gene therapy, genetic testing, […]
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Patient Focused
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The 5th Annual Canadian Children, Youth and Communities (CCYC) In | Equity Conference
This conference reaches a national, interdisciplinary audience and is a collaborative space where ideas are put into practice. Together, you'll explore how sustainable solutions and community partnerships can improve child […]
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Cardiac Precision Medicine in the 21st Century
The 10th International Cardiovascular Genomic Medicine & SickKids Cardiac Precision Medicine Conference is making its debut in North America! This year's theme, "Cardiac Precision Medicine in the 21st Century," delves […]
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Easing Pain, Advancing Care: A New Pathway for Children with Severe Neurological Impairments
This webinar will provide an overview of the multi-phased project, from clinical trial to implementation. It will highlight the clinical complexity of assessing pain and irritability; the project’s relevance and […]
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Taking multiple medications? 5 questions to ask
In recognition of Canadian Patient Safety Week 2025 (October 27-31), join Dr. Emily McDonald — a physician specializing in patient safety and Director of the Canadian Medication Appropriateness and Deprescribing […]
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They are sacred: First Nations’ Journey in Autistic Care and Advocacy
UPCOMING RESEARCH FORUM | Grant Bruno, Mariam Ahmad and Tierney Littlechild offer insights on how First Nations families, Elders, autistic individuals, and community leaders are reshaping autism support through Indigenous […]
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Ehlers-Danlos Society ECHO Summit: Mental Health
The Ehlers-Danlos Society is delighted to welcome you to register for the EDS ECHO Summit: Mental Health, a virtual event held on November 1, 2025. This event is suitable for […]
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Canadian Caregiving Summit 2025
A brighter future of care is possible. Following the release of A National Caregiving Strategy for Canada, the Canadian Caregiving Summit, hosted by the Azrieli Foundation’s Canadian Centre for Caregiving […]
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Screen4Rare: Making AI Diagnosis Understandable
A co-creation workshop inviting non-AI experts to help design communication tools such as videos and brochures that make AI-supported diagnosis more understandable, trustworthy and human.
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Webinar: Health Financing & Social Health Protection for Rare Diseases
Rare Diseases International (RDI) and the P4H Network have partnered to enable global advocacy and collaboration to influence and support innovation in health financing arrangement and social health protection that […]
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2025 Canadian Fragile X Conference
November 7–8, 2025 | Toronto, Ontario Canada’s first national Fragile X conference
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!