6th Western Canadian Neuromuscular Conference
The 6th Western Canadian Neuromuscular Conference is confirmed for 2026! Don’t miss the opportunity to network with leading experts and stay at the forefront of medical advancements in the field […]
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Patient Focused
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Biennial National Conference
Registration information coming soon.
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Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights, and cGMP Gene Therapy Manufacturing capabilities in Canada
The Stem Cell Network (SCN) and the National Research Council Canada (NRC) are excited to contribute to the national conversation on cell and gene therapy for rare diseases. Building on […]
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CAGC & CCMG Joint Conference
The CAGC & CCMG Joint Conference will be a unique gathering of medical and laboratory geneticists and genetic counsellors with diverse expertise, all sharing a common interest in education and […]
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Global Alliance for Genomics and Health (GA4GH) 13th Plenary
GA4GH 13th Plenary will bring together the global genomics and health community for workshops, presentations, and keynote talks that uncover opportunities to scale genomic and clinical data sharing.
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30th Annual International Congress of the World Muscle Society
The World Muscle Society is a dynamic community that aims to promote, disseminate, and share all aspects of neuromuscular physiology and diseases, from basic science to patient care. It encompasses […]
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A Conversation About Patient Partner Outsider Syndrome
Patient/caregiver partnership in health research has evolved substantially since the launch of Canada’s Strategy for Patient-Oriented Research (SPOR) over a decade ago. However, findings from the Patient Advisors Network (PAN) […]
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2nd Canadian Symposium on Neurofibromatosis
This Symposium is aimed at the patients and families, as well as clinicians and health professionals (doctors, nurses, researchers).
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Aging Out: Transition of care for children with rare neurodevelopmental disorders
Approximately one in 12 Canadians are affected by a rare disorder and two thirds of them are children, according to the Canadian Organization for Rare Disorders (CORD). Due to the […]
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RareKids-CAN Coffee Chat: Digital Storytelling with Krystle Schofield
Join other parents, caregivers, and individuals impacted by rare diagnosis and rare disease on October 16 at 8 P.M. EST. and learn about digital storytelling. Learn from Krystle Schofield, a […]
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RQMO 2025 Education Day
Under the theme "Rare Diseases: Let's Break Isolation Together!", this event aims to build bridges between those who live the daily reality of rare diseases and those who accompany and […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!