ALS Canada: ALS Clinical Trials Unboxed
On Friday, May 15, 2026 at 12 p.m. ET, join ALS Canada for our next ALS Clinical Trials Unboxed webinar to learn more about ongoing ALS clinical trials.
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.Â
National
Events
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RQMO: Le grand pouvoir des petites populations
6e Ă©pisode de la sĂ©rie de webinaires RARE.QC-RQMO prĂ©sentĂ© par Simon Girard, Ph.D, Professeur en gĂ©nĂ©tique humaine, UniversitĂ© du QuĂ©bec Ă Chicoutimi et un de ses Ă©tudiants au doctorat en […]
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4th Heritable Aortic Disorders Symposium
Join the Heritable Aortic Disorders community in Vancouver on May 22–23, 2026 for an in-person event bringing together experts from across Canada and around the world to discuss the latest […]
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CRDN-RAREvolution Information Webinar
FeaturedJoin us for our information webinar on May 27th, 2026 at 12PM MST/ 2PM EST.
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A REAL disease, NOT imagined
IMAGINE spending years, or even your entire life, trying to figure out what is wrong with you while being told “it’s all in your head”. The Ehlers-Danlos Syndromes (EDS), are complex connective […]
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Sickle Cell Awareness Group of Ontario: Learning for Life Webinar
Join SCAGO for an informative virtual session on Novel Therapies in Sickle Cell Disease Pain Management: What Patients and Families Should Know.
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RareKids-CAN-From Evidence to Access: Do Lived and Clinical Experiences Shape HTA Decisions?
This conversation will explore how patient and clinician perspectives are integrated into HTA evidence frameworks, how these insights influence decision-making in practice, and where opportunities remain to build more responsive […]
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NMD4C and MDC: Neuromuscular Mystery Case Rounds
Join NMD4C and Muscular Dystrophy Canada at their next CPD-accredited webinar, “Neuromuscular Mystery Case Rounds,” on Tuesday, June 2nd, 2026 at 5:00 p.m. ET, with their speaker, Dr. Albert Yeung, […]
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Muscular Dystrophy Canada- Working Together to Build E-Learning in Rare Neuromuscular Diseases: Lessons from Arthrogryposis
Muscular Dystrophy Canada is excited to host a webinar on building e-learning in rare neuromuscular diseases. The objectives of this session are as follows: Recognize the key principles of knowledge […]
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Building on Progress: Charting the Future of Canada’s Rare Disease Strategy
Leading experts and advocates will convene to discuss the critical insights, challenges, and opportunities in advancing Canada's National Rare Disease Strategy. Drawing upon key findings from a recent national study, […]
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RareKids-CAN Advanced Therapy Medicinal Products (ATMPs) series: ATMP Webinar: A Practical Primer for Clinical Coordinators, Nurses & Pharmacists
Designed for clinical coordinators, nurses, pharmacists, and research staff working in pediatric rare disease trials, this introductory session will provide a practical overview of: 🔹 Gene therapies, cell therapies, and […]
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Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!