Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
National
Events
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Cystic Fibrosis Canada’s 2026 Webinar: Spotlight on CF Research 2026
Register now for Cystic Fibrosis Canada's 2026 Spotlight on CF Research Webinar, offered in English and French with live simultaneous interpretation.
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CORD Webinar: From Genomic Testing Readiness to Rare Disease System Readiness
Join Durhane Wong-Rieger (CORD) and Don Husereau (University of Ottawa) for a discussion on moving from genomic testing readiness to rare disease system readiness and shaping the next phase of […]
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CIHR: Information Webinar for Canadian applicants to the ERDERA Clinical Trial Call 2026
CIHR is hosting an information session to provide interested Canadian applicants with information on the requirements of the “ERDERA Clinical Trial Call 2026 (ECTC 2026)” funding opportunity and to answer […]
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IMPaCT Webinar: Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials
Register today for IMPaCT's next webinar with Ami Baba, PhD, where she'll discuss Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials. ✅ Identify who needs trial reporting […]
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CORD Webinar: The Cost of Waiting: Socioeconomic Impact of Rare Disease in Canada
CORD is pleased to invite you to our upcoming webinar, The Cost of Waiting: Socioeconomic Impact of Rare Disease in Canada . Join patients, caregivers, clinicians, researchers, policy makers and […]
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DNA2RNA: Generative AI to Predict and Engineer Human Tissues and Cells
Join D2R for this hybrid seminar with Professor Mo Lotfollahi from the Wellcome Sanger Institute and the Cambridge School of AI in Medicine at the University of Cambridge about "Generative AI […]
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Kabuki Syndrome Foundation Live Webinar: Together for Progress
Join the Kabuki Syndrome Foundation at their upcoming live webinar, Together for Progress, on July 16, 2026. You can look forward to the latest updates on treatment development, learn about […]
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RareKids-CAN: Delivering Gene Therapy Trials: Understanding Clinical Workflows, Operations, and the Patient Journey
Join RareKid-CAN on July 22nd for their second webinar in our ATMP series for research coordinators, nurses, pharmacists, investigators, and other clinical research professionals. Their speaker Ana Stosic will provide […]
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Health Canada Webinar: Real-World Evidence in the National Strategy for Drugs for Rare Diseases
This session is designed to provide you with a clear understanding of the goals, an update on progress, and the next steps as planning advances. It will include a short […]
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CORD Webinar: Building the Baseline: How Does Canada Measure Up in Terms of Rare Disease Readiness?
Join CORD for an interactive 60-minute indicator lab exploring how Canada can measure progress in rare disease readiness. Together, experts and participants will examine and rate key policy and delivery […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!