2025 Canadian Fragile X Conference
November 7–8, 2025 | Toronto, Ontario Canada’s first national Fragile X conference

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
November 7–8, 2025 | Toronto, Ontario Canada’s first national Fragile X conference
TSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Canada to join us!
Join ISCT on November 10 for an engaging Town Hall discussion on the real-world implementation of gene therapy for sickle cell disease (SCD). The session will be led by Dr. […]
Discover the value of having an intellectual property (IP) strategy in your repurposing project and how to use this to drive succes.
Bringing together neuroscience researchers, patients, advocates and caregivers to highlight brain health research in an accessible format.
Muscular Dystrophy Canada in partnership with the Neuromuscular Disease Network for Canada (NMD4C)’s Clinical Trial Network is excited to host three Hope on the Horizon events! These webinars are geared […]
Interactive 3-hour F-words Foundations Workshop to explore how to bring the F-words for Child Development—Functioning, Family, Fitness, Fun, Friends, and Future—into everyday practice and life!
The Canadian Association for Research Excellence in Leukodystrophy (CARELeuko) is excited to welcome you to the 2025 CARELeuko Symposium: Uniting Canada's Leukodystrophy Community to Drive Collaboration and Accelerate Research and […]
Reducing Genetic and Genomic Health Disparities for Indigenous People of Canada: Insights from the Silent Genomes Project
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
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