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Events

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.

Watch our walkthrough videos in English and French for guidance navigating the calendar HERE. 

Cavernous Malformation Canada – 2024 Patient Conference

SickKids Hospital Peter Gilgan Centre for Research and Learning 170 Elizabeth St Toronto, ON M5G 1E8, Canada, Toronto, Ontario, Canada

This year our patient conference is ONE DAY ONLY, with optional activities happening Saturday. Keynote by Dr. Brent Derry, many expert presentations, and lunch with the scientists, as well as […]

21st BI-ANNUAL NATIONAL SCLERODERMA CONFERENCE

St John's Conference Centre St John's, Newfoundland, Canada

Held in beautiful St. John’s, NL, the 21st Bi-Annual National Scleroderma Conference offers an information-rich opportunity for people living with scleroderma, their caregivers, family members, friends, and medical professionals.  ​Research […]

Canadian Scleroderma Research Group – Navigating Systemic Sclerosis Waters

The CME (Continuing Medical Education) Session hosted at the National Scleroderma Conference is for family practitioners, ER physicians, critical care physicians, internists, rheumatologists, nephrologists, cardiologists, respirologists, nurses, physiotherapists, occupational therapists, […]

CANPKU+ 2024 ANNUAL GENERAL MEETING

Please note only those who are current members will have the availability to vote at the upcoming AGM. Please check your profile to see if your membership is current. Not […]

CHAEN / International Guideline Conference

Hilton Hotel Toronto Toronto, Ontario, Canada

The Canadian Hereditary Angioedema Network (CHAEN) is an organization of physicians who treat and/or are interested in Hereditary Angioedema. CHAEN is incorporated under the Canada Not-For-Profit Corporations Act. CHAEN unites […]

4th International Symposium on Arthrogryposis

The International Symposium on Arthrogryposis provides a platform for learning and exchanging on the clinical management and research in Arthrogryposis Multiplex Congenita (AMC) in the areas of genetics, orthopedics, and […]

4th Regional Meeting on ITP – PDSA Canada

The Courtyard Marriott Burlington Burlington, Ontario, Canada

On September 29, 2024, the 4th annual Canadian Regional Meeting will take place in Burlington, ON, for patients and families affected by ITP. The event will be held at the […]

Share your Event

Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!

Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details

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