EP PerMed Hackathon
This is your chance to be a part of an immersive event at the forefront of innovation in personalised medicine. Join ER PerMed and work together with experts, innovators, and […]
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
International
Events
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Rare Kidney Disease Foundation: 5th International ADTKD Summit
The Rare Kidney Disease Foundation presents: RKDF 5th International ADTKD Summit - A Time For Action Friday, March 6, 10AM - 1:00PM EST - Science Program Saturday, March 7, 10AM […]
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Palliative care for leukodystrophies and other rare neurological diseases (pediatric focus)
Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of […]
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Rare Disease Summit: Access USA
The Rare Disease Summit unites stakeholders to accelerate therapeutic innovation for areas of unmet medical need. Gain actionable insights on launch planning, market access, reimbursement strategies and strategic partnerships to […]
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Rare Diseases International-Global Perspectives on Rare Disease Centers: What We Learned from Case Studies
Join RDI for a public webinar exploring how rare disease centers are organized and how they function in practice across different countries and health system contexts. Rare disease centers play […]
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MAINFRAME Symposium on AI-Driven Small-Molecule Drug Discovery
Co-organized by Conscience in partnership with The Structural Genomics Consortium (SGC) and local organizers at the Vall d’Hebron Institute of Oncology (VHIO), the Barcelona Supercomputing Center (BSC), and the Institute […]
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People’s Perspectives: Living with Loeys-Dietz Syndrome
For the first time, the Loeys-Dietz Syndrome Foundation Canada and the Loeys-Dietz Syndrome Foundation – a division of the Marfan Foundation – are joining forces to bring you real talk […]
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4th Annual Scientific Symposium on SPG4
The premier gathering for childhood-onset SPG4 research returns in 2026 — uniting leading scientists, clinicians, industry innovators, patient advocates, and families for three days of focused collaboration. Designed to accelerate […]
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Gene Therapy for IEI: It’s Taken Us So Long ‘Cause We’ve Got So Far To Come
Moderated by Dr. Jordan Orange, this important conversation will explore the progress, promise, and future of gene therapy for Inborn Errors of Immunity.
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3rd Symposium on Autoinflammation and Immune Dysregulation: “Celebrating Autoinflammation: On the Shoulders of a Giant
This 3rd NIH Symposium on autoinflammatory and immunedysregulatory diseases marks a unique occasion to honor Dr. Dan Kastner, the founding father of autoinflammation, for his invaluable contributions in establishing and […]
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International Drug Repurposing Conference 2026
Join the leading international drug repurposing conference to explore the future of patient-centric medicines repurposing. From rare diseases and AI-driven drug discovery, to policy, funding and community-led success stories, iDR26 […]
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ECRD: Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases
The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe. By bringing together people with rare diseases and patient advocates, policy makers, healthcare industry representatives, clinicians, regulators and Member State representatives, EURORDIS […]
Share your Event
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HERE!