Global Genes: RARE Drug Development Symposium
Join Global Genes virtually from September 9 – 11, 2026 and access high-impact sessions directly from your home or office. What’s included in the Live Stream: 2 Fireside Chats 6 […]
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Industry
Events
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IMPaCT Webinar: European Pediatric Clinical Trial Networks and Infrastructure: Partnership and Funding Opportunities
The webinar will explore the landscape of pediatric trial networks in Europe, the Horizon Europe PRISM Clinical Trial Call, and practical lessons for developing and leading Horizon Europe consortium applications. […]
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Cavernous Malformation Canada Patient & Family Conference
Join Cavernous Malformation for an educational two-day patient and family conference featuring expert speakers, interactive opportunities between patients and clinicians, and meaningful moments of connection and sharing with others impacted […]
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SickKids: Neurovascular Family Education Day 2026
Please join SickKids for an educational event for patients, families, and care-givers featuring expert speakers on Moyamoya Disease.
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Pulmonary Hypertension Association Canada’s PH Community Conference & Scientific Sessions
🔬 Thursday, September 24 CPHPN and CaPH-Net meetings (by invitation) and the Scientific Sessions Opening Reception. Primarily for healthcare professionals, researchers, and invited network members. 🩺 Friday, September 25 Scientific […]
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ERDERA:Diagnostic Research Workstream – Session 2: Data Sharing, Data Management & Ethics
This webinar gives an overview of the ERDERA Diagnostic Research Workstream’s data sharing framework, covering the Data Sharing Framework Agreement, ethical/governance requirements, and the data submission process via GPAP/Phenostore and […]
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Rare Diseases International: Innovative Financing for Rare Diseases: From Concept to Implementation
This final webinar focuses on what it takes to move from models on paper to solutions that work in practice. It will look at feasibility, governance, stakeholder alignment, and the concrete pathways countries and funders […]
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17th International Symposium on Sjögren’s Disease
This prestigious event, which brings together researchers, physicians, patients and experts from around the world to discuss the latest advancements in Sjögren's disease.
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ERDERA: Regulatory Insights of Advanced Therapies Research & Development
This ERDERA webinar will explore the rules and guidance that should be followed to ensure advanced therapy medicinal product (ATMP) research complies with regulatory requirements, supporting responsible research and smooth […]
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Kids Brain Health Network (KBHN) Annual Conference
Kids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference, happening October 18–20, 2026, in Calgary, Alberta!
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NORD Breakthrough Summit 2026
Shape the future of rare disease treatments, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough Summit.®
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World Orphan Drug Congress Europe 2026
The World Orphan Drug Congress is Europe's largest and most established orphan drug & rare disease meeting. From cell and gene therapy, genetic testing, and market access, to real world evidence, this one […]
Share your Event
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HERE!