36th International Symposium on ALS/MND
The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year they bring together researchers from around the world to share new understanding of amyotrophic […]
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Industry
Events
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2nd International Conference on Clinical Research Networks (CRNs) for Rare Diseases
This second edition will convene a wide range of international experts, including researchers, clinicians, patient advocates, industry representatives, policymakers, and funders to strengthen the collaborative ecosystem that underpins clinical research […]
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Canada’s Drug Agency-Preconsultation Webinar: Improvements to the Drug Reimbursement Review Process
Join CDA's preconsultation webinar on proposed improvements and upcoming procedural changes to our drug reimbursement review process. You will hear from their senior leaders how these plans will advance our […]
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RareKids-CAN- From Evidence to Access: Advancing Pediatric Rare Disease Drug Availability in Canada
Join RareKids-CAN for an in-depth discussion on the evolving role of health technology assessment and reimbursement policy in improving access to pediatric rare disease care.
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RQMO: 2nd Zebinary of the Month of Zebra 2026
Speaker: Dr. André Megarbane, Professor, Department of Human Genetics, lebanese American University, Beirut, Lebanon
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RQMO: 3rd Zebinary of the Month of Zebra 2026
3rd Zebinary of the Month of Zebrier 2026 Speaker: - David Cohen, Professor, Faculty of Health, Sorbonne University, Paris, France
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RQMO: 4th Zebinary of the Month of Zebra 2026
Speaker: - Jacques P. Tremblay, Ph.D, Full Professor, Department of Molecular Medicine, Faculty of Medicine, Université Laval
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RQMO: 5th Zebinary of the Month of Zebra 2026
Speakers: - Christine Yergeau, Msc, RARE Network Manager. QC - Lilit Antonyan, Research Pillars Coordinator at RARe.qc
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Rare Disease Day 2026: Advancing the Rare Brain Disease Ecosystem
Placing brain health at the core of rare brain disease prevention and management, this event gathers multidisciplinary experts from research, clinical care, patient advocacy, and industry to share perspectives and […]
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RQMO: 7th Zebinary of the Month of Zebra 2026
Speakers: - Kim Auclair, consultant, speaker and blogger - Elsie Côté, Founder and President of Sirote-moi
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PhenoTips: Matchmaking for Rare Disease Diagnosis
Matchmaking for Rare Disease Diagnosis is a panel discussion and interactive Q&A with patient matchmaking pioneers, Dr. Nara Sobreira, Matthew Osmond, CGC, and Dr. Orion Buske.
Share your Event
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HERE!