6th Western Canadian Neuromuscular Conference
The 6th Western Canadian Neuromuscular Conference is confirmed for 2026! Don’t miss the opportunity to network with leading experts and stay at the forefront of medical advancements in the field […]

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
The 6th Western Canadian Neuromuscular Conference is confirmed for 2026! Don’t miss the opportunity to network with leading experts and stay at the forefront of medical advancements in the field […]
Registration information coming soon.
The Stem Cell Network (SCN) and the National Research Council Canada (NRC) are excited to contribute to the national conversation on cell and gene therapy for rare diseases. Building on […]
GA4GH 13th Plenary will bring together the global genomics and health community for workshops, presentations, and keynote talks that uncover opportunities to scale genomic and clinical data sharing.
The World Muscle Society is a dynamic community that aims to promote, disseminate, and share all aspects of neuromuscular physiology and diseases, from basic science to patient care. It encompasses […]
The World Orphan Drug Congress is the largest and most established orphan drug & rare disease meeting of its kind across the globe. From cell and gene therapy, genetic testing, […]
Join ISCT on November 10 for an engaging Town Hall discussion on the real-world implementation of gene therapy for sickle cell disease (SCD). The session will be led by Dr. […]
This pan-Canadian event brings together teams using the OMOP common data model to advance research collaboration across Canada and beyond.
The programme features experts from a variety of fields, ranging from basic and translational research to clinical application and the ethical, social and legal aspects of rare disease research.
Discover the value of having an intellectual property (IP) strategy in your repurposing project and how to use this to drive succes.
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
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