people_banner_v1-1-scaled

Events

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.

Watch our walkthrough videos in English and French for guidance navigating the calendar HERE. 

Global Rare Diseases Research Symposium

Greenland International Convention Center Shanghai, China

IRDiRC is co-hosting together with Hope for Rare Foundation and Fudan University, the Global Rare Diseases Research Symposium & The Second China Rare Disease Research and Translational Medicine Annual Conference […]

CMT Clinical Trial Readiness Summit

Loews Coronado Bay Resort San Diego, CA, United States

As new clinical trials emerge for Charcot-Marie-Tooth disease (CMT), the importance of optimizing measures, endpoints and the participant experience has never been more urgent! Hereditary Neuropathy Foundation (HNF) is committed […]

World Congress for Rare Skin Disorders

Maison Internationale Paris, France

The objectives of the world congress for rare disorders are: To learn on diagnosis (including pathophysiology and disease classification) To develop a multidisciplinary approach and improve their skills to manage […]

Health Technology Assessment International Annual Meeting 2024

Barcelo Convetion Centre Seville, Spain

Held each year in June, the HTAi Annual Meeting is a key international gathering for sharing cutting-edge research, advancing discussions in policy and methods, and building global networks. Throughout the […]

IRSF Rett Syndrome Scientific Meeting

westminister Westminister, CO, United States

Part of ASCEND 2024, the IRSF Rett Syndrome Scientific Meeting brings together scientists and researchers studying Rett syndrome and related areas from around the world. During this 2-day meeting, attendees […]

MitoMed Conference 2024

Hilton Cleveland Downtown Cleveland, OH, United States

Each year, the United Mitochondrial Disease Foundation (UMDF)'s Mitochondrial Medicine Conference brings together the best minds in mitochondrial medicine and gives patients and families the opportunity to meet some of […]

6th Fibrodysplasia Ossificans Progressiva (FOP) Drug Development Forum

Elite Hotel Tower Marina Stockholm, Sweden

The Drug Development Forum (DDF) brings together biotech and pharmaceutical companies, academic researchers and clinician scientists to collaborate and advance Fibrodysplasia Ossificans Progressiva (FOP) research. It's an opportunity to discuss […]

IFPA Conference the 7th World Psoriasis & Psoriatic Arthritis Conference

Stockholm Waterfront Congress Centre Nils Ericsons Plan 4, Stockholm, Sweden

Established in 2006, the IFPA Conference (also known as the World Psoriasis & Psoriatic Arthritis Conference) provides a unique, cross-specialty platform. Medical and health professionals present frontline clinical research in […]

The Global Cell & Gene Therapy Summit

Boston Marriott Newton Hotel Boston, MA, United States

Cell and gene therapy represent intersecting fields of biomedical research with the shared goal of treating, preventing, or curing diseases. These approaches are aimed at understanding the underlying causes of […]

North America Rare Diseases Summit 2024

Radisson Blu Aqua Hotel Chicago, IL, United States

This event brings together leading researchers, healthcare professionals, patient advocates, policymakers, industry experts, and rare disease patients and families. The summit emphasizes the power of collaboration and solidarity in facing […]

Share your Event

Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!

Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details

HERE!

Skip to content