Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
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Join Global Genes virtually from September 9 – 11, 2026 and access high-impact sessions directly from your home or office. What’s included in the Live Stream: 2 Fireside Chats 6 General Sessions Keynote Talks Pitch Perfect Session Connect with advocates, researchers, and leaders shaping the future of rare drug development. |
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The webinar will explore the landscape of pediatric trial networks in Europe, the Horizon Europe PRISM Clinical Trial Call, and practical lessons for developing and leading Horizon Europe consortium applications. MICYRN Scientific Director, Thierry Lacaze-Masmonteil, MD, PhD, will moderate a panel to discuss pathways for Canadian participation in European trial teams, funding strategies and approaches […] |
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Join Cavernous Malformation for an educational two-day patient and family conference featuring expert speakers, interactive opportunities between patients and clinicians, and meaningful moments of connection and sharing with others impacted by cavernous malformation. |
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Please join SickKids for an educational event for patients, families, and care-givers featuring expert speakers on Moyamoya Disease. |
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🔬 Thursday, September 24 CPHPN and CaPH-Net meetings (by invitation) and the Scientific Sessions Opening Reception. Primarily for healthcare professionals, researchers, and invited network members. 🩺 Friday, September 25 Scientific Sessions — a full day dedicated to the latest PH research, clinical advancements, and collaboration among healthcare professionals and researchers. The day concludes with the […] |
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This webinar gives an overview of the ERDERA Diagnostic Research Workstream’s data sharing framework, covering the Data Sharing Framework Agreement, ethical/governance requirements, and the data submission process via GPAP/Phenostore and RD3. Intended for researchers, clinicians, data managers, ERN and National Mirror Group members involved in or interested in ERDERA diagnostic research. |
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2 events,This prestigious event, which brings together researchers, physicians, patients and experts from around the world to discuss the latest advancements in Sjögren's disease.
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This final webinar focuses on what it takes to move from models on paper to solutions that work in practice. It will look at feasibility, governance, stakeholder alignment, and the concrete pathways countries and funders can use to adopt and sustain these mechanisms. The discussion will pay particular attention to how innovative financing can support the integration of rare diseases into […] |
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This ERDERA webinar will explore the rules and guidance that should be followed to ensure advanced therapy medicinal product (ATMP) research complies with regulatory requirements, supporting responsible research and smooth clinical translation. Particular attention will be given to genome editing and paediatric research, two areas that raise specific regulatory considerations within the ATMP field. |
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Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!
