The World Orphan Drug Congress
The World Orphan Drug Congress is the largest and most established orphan drug & rare disease meeting of its kind across the globe. From cell and gene therapy, genetic testing, […]
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
In Person
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Canadian Caregiving Summit 2025
A brighter future of care is possible. Following the release of A National Caregiving Strategy for Canada, the Canadian Caregiving Summit, hosted by the Azrieli Foundation’s Canadian Centre for Caregiving […]
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IPIC 2025
IPIC is one of the leading international congresses on primary immunodeficiency (PID) diagnosis and clinical care with a unique approach to its scientific programme underpinned by its focus on patient-centredness. […]
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2025 Canadian Fragile X Conference
November 7–8, 2025 | Toronto, Ontario Canada’s first national Fragile X conference
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TSF’s Toronto Patient Day for Rare Neuroinflammatory Disorders
TSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Canada to join us!
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Pan-Canadian OMOP Common Data Model Engagement Event
This pan-Canadian event brings together teams using the OMOP common data model to advance research collaboration across Canada and beyond.
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ITINERARE Symposium 2025
The programme features experts from a variety of fields, ranging from basic and translational research to clinical application and the ethical, social and legal aspects of rare disease research.
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CARELeuko Symposium 2025
The Canadian Association for Research Excellence in Leukodystrophy (CARELeuko) is excited to welcome you to the 2025 CARELeuko Symposium: Uniting Canada's Leukodystrophy Community to Drive Collaboration and Accelerate Research and […]
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36th International Symposium on ALS/MND
The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year they bring together researchers from around the world to share new understanding of amyotrophic […]
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SMA Together: Learn. Share. Connect. A Mini-Regional Conference – Toronto
The SMA Together: Learn. Share. Connect. Mini-regional conference in Toronto is less than three weeks away! Join them, in-person on December 13 to learn about the latest updates in spinal […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!