
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
In Person
Events
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Canadian Genomics Innovation Showcase
Join the Consulate General of Canada in Boston for an exclusive program showcasing the strength and momentum of Canada’s genomics and life sciences ecosystems.
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Brain-Heart Interconnectome (BHI) State of the Science Summit
The summit is an international conference meant to highlight the latest science at the crossroads of brain and heart health, showcasing innovation and state-of-the-art research.
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4th Edition of the Sickle Cell Awareness Day Education Conference
The Sickle Cell Disease Association of Canada (SCDAC), in partnership with the Interdisciplinary Centre for Black Health (ICBH), is bringing the sickle cell community together at the University of Ottawa […]
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RareKids-CAN-Kids Rare Disorders Awareness: Supporting Early Recognition & Families in Nova Scotia
Join RareKids-CAN Clinical Trial Navigator Ameen Abdelmajid of the IWK Health for a series of community information sessions in partnership with Halifax Public Libraries. These free sessions are designed for […]
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Sickle Cell Awareness Group of Ontario-Annual Summit 2026 Registration
Join SCAGO for an educational two-day summit bringing together researchers, clinicians, advocates, and community members all working to transform sickle cell care.
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RareKids-CAN-Kids Rare Disorders Awareness: Supporting Early Recognition & Families in Nova Scotia
Join RareKids-CAN Clinical Trial Navigator Ameen Abdelmajid of the IWK Health for a series of community information sessions in partnership with Halifax Public Libraries. These free sessions are designed for […]
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Cavernous Malformation Canada Clinical & Scientific Symposium
Hosted by the driven team at Cavernous Malformation Canada (CMC) and their Clinical and Scientific Advisory Board, the 2026 Cavernous Malformation Clinical and Scientific Symposium will be informative not only […]
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Regroupement Quebecois des Maladies Orphelines (RQMO) Educational Day 2026
This year, the RQMO Educational Day will be held at the Travelodge Hotel in Quebec City (3125 Hochelaga Boulevard) and will have the theme "The impacts of rare diseases – […]
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Pulmonary Hypertension Association Canada’s PH Community Conference & Scientific Sessions
🔬 Thursday, September 24 CPHPN and CaPH-Net meetings (by invitation) and the Scientific Sessions Opening Reception. Primarily for healthcare professionals, researchers, and invited network members. 🩺 Friday, September 25 Scientific […]
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Kids Brain Health Network (KBHN) Annual Conference
Save the Date! Kids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference, happening October 18–20, 2026, in Calgary, Alberta!
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!