
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
In Person
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RQMO Educational Day 2024
The 2024 RQMO educational day will focus on a theme that affects many families who have a child with a rare disease: The transition to adulthood of children with differences.
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#ChildHealthCan2024
St.Johns, Newfoundland 50 New Gower Street, St.Johns, Newfoundland, CanadaChildren’s Healthcare Canada and co-hosts, the Janeway Children's Hospital Foundation and NL Health Services, invite you to join us in picturesque Newfoundland and Labrador from October 20-22, at the St. […]
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World Orphan Drug Congress 2024
Fira de Barcelona Montjuic Barcelona, SpainThe World Orphan Drug Congress is the largest, most established European meeting dedicated to orphan drugs. This year the conference will take place in Barcelona, Spain. From cell & gene […]
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Celebrating 15 Years of TACT: A Milestone Event in Boston
This year marks the 15th anniversary of the TREAT-NMD Advisory committee for therapeutics (TACT). TACT was set up in 2009 by Prof. Volker Straub and Kate Bushby to provide the neuromuscular […]
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Developing Therapies in Rare Neuromuscular Disease
The symposium is designed for industry professionals involved in developing treatments for rare neuromuscular diseases and offers a unique opportunity to learn from past mistakes, engage with leading experts, and […]
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2024 Annual Pain Centre Conference – Building Bridges to Reduce Disparities in Pediatric Pain
toronto, ontario 686 Bay Street, Toronto, Ontario, Canada -
2024 International Congress for Ataxia Research
Today marks the opening of the largest-ever scientific conference on ataxia research — the International Congress for Ataxia Research (ICAR) is welcoming a record-setting 600 attendees. The London-based conference runs […]
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4th Annual Symposium for Researchers and Clinicians on Wiskott Aldrich Syndrome
San Raffaele Institute Milan, ItalyThe fourth international symposium for researchers and clinicians on Wiskott Aldrich Syndrome is being held in Milan, Italy and offers access to the latest research and analysis related to this […]
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Genetic Rare Immune Disorders Symposium (GRIDS)
GRIDS brings together world renowned experts from across the globe to discuss recent developments and unique challenges in the field of lysosomal storage disorders and/or rare genetic diseases.
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2025 International Scientific Conference on Albinism
The Global Albinism Alliance (GAA) is very pleased to announce the 2025 International Scientific Conference on Albinism – ISCA 2025, that will be held virtually on January 21-24, 2025. ISCA is THE meeting point worldwide […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!