
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
In Person
Events
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Pan-Canadian OMOP Common Data Model Engagement Event
This pan-Canadian event brings together teams using the OMOP common data model to advance research collaboration across Canada and beyond.
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ITINERARE Symposium 2025
The programme features experts from a variety of fields, ranging from basic and translational research to clinical application and the ethical, social and legal aspects of rare disease research.
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CARELeuko Symposium 2025
The Canadian Association for Research Excellence in Leukodystrophy (CARELeuko) is excited to welcome you to the 2025 CARELeuko Symposium: Uniting Canada's Leukodystrophy Community to Drive Collaboration and Accelerate Research and […]
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36th International Symposium on ALS/MND
The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year they bring together researchers from around the world to share new understanding of amyotrophic […]
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SMA Together: Learn. Share. Connect. A Mini-Regional Conference – Toronto
The SMA Together: Learn. Share. Connect. Mini-regional conference in Toronto is less than three weeks away! Join them, in-person on December 13 to learn about the latest updates in spinal […]
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8th TREAT-NMD® International Conference – Lisbon, 2026
Join TREAT-NMD at this vital, in-person gathering where patients, clinicians, researchers, industry, and regulators come together to tackle the biggest challenges in neuromuscular treatment development, diagnosis and care. Topics will […]
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Rare Disease Day 2026: Advancing the Rare Brain Disease Ecosystem
Placing brain health at the core of rare brain disease prevention and management, this event gathers multidisciplinary experts from research, clinical care, patient advocacy, and industry to share perspectives and […]
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EP PerMed Hackathon
This is your chance to be a part of an immersive event at the forefront of innovation in personalised medicine. Join ER PerMed and work together with experts, innovators, and […]
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Rare Disease Summit: Access USA
The Rare Disease Summit unites stakeholders to accelerate therapeutic innovation for areas of unmet medical need. Gain actionable insights on launch planning, market access, reimbursement strategies and strategic partnerships to […]
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MAINFRAME Symposium on AI-Driven Small-Molecule Drug Discovery
Co-organized by Conscience in partnership with The Structural Genomics Consortium (SGC) and local organizers at the Vall d’Hebron Institute of Oncology (VHIO), the Barcelona Supercomputing Center (BSC), and the Institute […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!