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Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.Â
In Person
Week in RARE: RARE Advocacy Summit and Health Equity Forum
Kansas City Kansas City, MO, United StatesGlobal Genes is on the move — Week in RARE is moving to Kansas City, Missouri in 2024. Week in RARE combines the RARE Health Equity Forum and RARE Advocacy […]
North American Cystic Fibrosis Conference
Boston Convention and Exhibition Center Boston, MA, United StatesNACFC provides a collaborative and educational forum for all CF professionals. The educational elements of the meeting program are targeted to physicians, nurses, research scientists, respiratory therapists, physical therapists, nutritionists, […]
2024 Global CMT Research Convention
Cambridge Cambridge, MA, United StatesThe CMT Research Foundation unites the voices of patients, researchers, pharma companies, and regulatory agencies to develop treatments for CMT. This event takes place over three days. Thursday and Friday […]
Western Canadian Neuromuscular Conference (WCNMC)
Hotel Arts Calgary Calgary, Alberta, CanadaThis is the 5th WCNMC and is being held in Calgary on September 27 – 29, 2024. The conference has rotated locations in Western Canada with the inaugural conference hosted […]
4th International Symposium on Arthrogryposis
The International Symposium on Arthrogryposis provides a platform for learning and exchanging on the clinical management and research in Arthrogryposis Multiplex Congenita (AMC) in the areas of genetics, orthopedics, and […]
4th Regional Meeting on ITP – PDSA Canada
The Courtyard Marriott Burlington Burlington, Ontario, CanadaOn September 29, 2024, the 4th annual Canadian Regional Meeting will take place in Burlington, ON, for patients and families affected by ITP. The event will be held at the […]
International Conference on Newborn Screening 2024
The 2024 meeting of the International Consortium on Newborn Sequencing (ICoNS) will be held in New York City, USA on October 9 – 10, 2024. ICoNS is the premier event for […]
21st Biennial ESID Meeting
france Marseille, FranceThe ESID 2024 meeting in Marseille will cover the latest most exciting discoveries in basic and clinical science covering our expanding field, bringing together internationally renowned scientists and clinicians to present and […]
EPNS Research Meeting 2024
The EPNS has been organising Research Meetings since 2008. With an aim to enhance research in Paediatric Neurology, the meeting brings together leaders in the field, active researchers and young […]
Share your Event
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HERE!