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Events

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.

Watch our walkthrough videos in English and French for guidance navigating the calendar HERE. 

13th Conference of Undiagnosed Diseases Network International

Seoul National University Children's Hospital Seoul, Korea, Republic of

This event will be held in Seoul, South Korea, and promises to be an enriching experience filled with insightful discussions and valuable networking opportunities.

C-Path 2024 Global Impact Conference

Attendees of the 3-day conference, including patients, providers, researchers, clinicians, biopharmaceutical companies, regulatory reviewers and scientists, will leave with knowledge of: Accelerating drug development across neurology, rare diseases, pediatrics, and […]

31st European Paediatric Rheumatology

Sweden Gothenburg, Sweden

As always at PReS meetings, the invited faculty represents internationally renowned clinicians and scientists who will present and discuss significant and exciting developments in pathophysiology, diagnostics, and clinical management of […]

Global Alliance for Genomics and Health – 12th Plenary

Park Hyatt Melbourne Melbourne, Australia

GA4GH 12th Plenary brings together organisations and initiatives from the genomics and health community for keynotes, talks, and workshops. The conference will focus on genomic and clinical data sharing issues […]

CHAEN / International Guideline Conference

Hilton Hotel Toronto Toronto, Ontario, Canada

The Canadian Hereditary Angioedema Network (CHAEN) is an organization of physicians who treat and/or are interested in Hereditary Angioedema. CHAEN is incorporated under the Canada Not-For-Profit Corporations Act. CHAEN unites […]

Week in RARE: RARE Advocacy Summit and Health Equity Forum

Kansas City Kansas City, MO, United States

Global Genes is on the move — Week in RARE is moving to Kansas City, Missouri in 2024. Week in RARE combines the RARE Health Equity Forum and RARE Advocacy […]

North American Cystic Fibrosis Conference

Boston Convention and Exhibition Center Boston, MA, United States

NACFC provides a collaborative and educational forum for all CF professionals. The educational elements of the meeting program are targeted to physicians, nurses, research scientists, respiratory therapists, physical therapists, nutritionists, […]

2024 Global CMT Research Convention

Cambridge Cambridge, MA, United States

The CMT Research Foundation unites the voices of patients, researchers, pharma companies, and regulatory agencies to develop treatments for CMT. This event takes place over three days. Thursday and Friday […]

Western Canadian Neuromuscular Conference (WCNMC)

Hotel Arts Calgary Calgary, Alberta, Canada

This is the 5th WCNMC and is being held in Calgary on September 27 – 29, 2024. The conference has rotated locations in Western Canada with the inaugural conference hosted […]

4th International Symposium on Arthrogryposis

The International Symposium on Arthrogryposis provides a platform for learning and exchanging on the clinical management and research in Arthrogryposis Multiplex Congenita (AMC) in the areas of genetics, orthopedics, and […]

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Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!

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