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Events

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.

Watch our walkthrough videos in English and French for guidance navigating the calendar HERE. 

Brain-Heart Interconnectome State of the Science Summit

National Arts Centre Ottawa Ottawa, Ontario, Canada

The Summit is an international conference set to highlight cutting-edge science at the crossroads of brain and heart health, showcasing innovation and state-of-the art research. Learn from international experts, leaders […]

World Congress for Rare Skin Disorders

Maison Internationale Paris, France

The objectives of the world congress for rare disorders are: To learn on diagnosis (including pathophysiology and disease classification) To develop a multidisciplinary approach and improve their skills to manage […]

IRSF Rett Syndrome Scientific Meeting

westminister Westminister, CO, United States

Part of ASCEND 2024, the IRSF Rett Syndrome Scientific Meeting brings together scientists and researchers studying Rett syndrome and related areas from around the world. During this 2-day meeting, attendees […]

MitoMed Conference 2024

Hilton Cleveland Downtown Cleveland, OH, United States

Each year, the United Mitochondrial Disease Foundation (UMDF)'s Mitochondrial Medicine Conference brings together the best minds in mitochondrial medicine and gives patients and families the opportunity to meet some of […]

IFPA Conference the 7th World Psoriasis & Psoriatic Arthritis Conference

Stockholm Waterfront Congress Centre Nils Ericsons Plan 4, Stockholm, Sweden

Established in 2006, the IFPA Conference (also known as the World Psoriasis & Psoriatic Arthritis Conference) provides a unique, cross-specialty platform. Medical and health professionals present frontline clinical research in […]

North America Rare Diseases Summit 2024

Radisson Blu Aqua Hotel Chicago, IL, United States

This event brings together leading researchers, healthcare professionals, patient advocates, policymakers, industry experts, and rare disease patients and families. The summit emphasizes the power of collaboration and solidarity in facing […]

Cavernous Malformation Canada – 2024 Patient Conference

SickKids Hospital Peter Gilgan Centre for Research and Learning 170 Elizabeth St Toronto, ON M5G 1E8, Canada, Toronto, Ontario, Canada

This year our patient conference is ONE DAY ONLY, with optional activities happening Saturday. Keynote by Dr. Brent Derry, many expert presentations, and lunch with the scientists, as well as […]

Platelet Disorder Support Association-ITP Conference 2024

The Westin Riverwalk San Antonio, TX, United States

This year, PDSA will host its 24th annual update on immune thrombocytopenia (ITP) for patients, caregivers and the medical community in San Antonio, Texas July 26-28. This year’s patient conference […]

21st BI-ANNUAL NATIONAL SCLERODERMA CONFERENCE

St John's Conference Centre St John's, Newfoundland, Canada

Held in beautiful St. John’s, NL, the 21st Bi-Annual National Scleroderma Conference offers an information-rich opportunity for people living with scleroderma, their caregivers, family members, friends, and medical professionals.  ​Research […]

Share your Event

Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!

Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details

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