NORD Living Rare, Living Stronger Patient and Family Forum 2024
Th 2024 Living Rare, Living Stronger NORD Patient and Family Forum will be held in Los Angeles, CA at the Hilton Universal City on June 8. After six years, they […]
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Hybrid
Events
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Hilton Universal City Los Angeles, CA, United States
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CMT Clinical Trial Readiness Summit
Loews Coronado Bay Resort San Diego, CA, United StatesAs new clinical trials emerge for Charcot-Marie-Tooth disease (CMT), the importance of optimizing measures, endpoints and the participant experience has never been more urgent! Hereditary Neuropathy Foundation (HNF) is committed […]
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Health Technology Assessment International Annual Meeting 2024
Barcelo Convetion Centre Seville, SpainHeld each year in June, the HTAi Annual Meeting is a key international gathering for sharing cutting-edge research, advancing discussions in policy and methods, and building global networks. Throughout the […]
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6th Fibrodysplasia Ossificans Progressiva (FOP) Drug Development Forum
Elite Hotel Tower Marina Stockholm, SwedenThe Drug Development Forum (DDF) brings together biotech and pharmaceutical companies, academic researchers and clinician scientists to collaborate and advance Fibrodysplasia Ossificans Progressiva (FOP) research. It's an opportunity to discuss […]
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The Global Cell & Gene Therapy Summit
Boston Marriott Newton Hotel Boston, MA, United StatesCell and gene therapy represent intersecting fields of biomedical research with the shared goal of treating, preventing, or curing diseases. These approaches are aimed at understanding the underlying causes of […]
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Pediatric Inclusion Roundtable – Effective Inclusion of Children Early in Clinical Trials
Join Leavitt Partners, LLC, and Friedreich’s Ataxia Research Alliance (FARA) for the Pediatric Inclusion Roundtable: Effective Inclusion of Children Early in Clinical Trials. The program will engage all stakeholders regarding […]
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2024 Global Learning Conference
Philadelphia Marriott Downtown Philadelphia, PA, United StatesThe Ehlers-Danlos Society is delighted to welcome you to register for our 2024 Global Learning Conference in Philadelphia, Pennsylvania, USA! Ehlers-Danlos Society will be hosting this exciting hybrid event, both […]
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Living with Rare Neuroimmune Conditions: Patient Views & Perspectives
Hilton Atlanta Atlanta, GA, United StatesPlease join Sumaira Ahmed, NMOSD patient and founder of The Sumaira Foundation, for a panel discussion featuring five patients living with rare neuroimmune conditions. Patient perspectives and lived experiences are […]
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Canadian Scleroderma Research Group – Navigating Systemic Sclerosis Waters
The CME (Continuing Medical Education) Session hosted at the National Scleroderma Conference is for family practitioners, ER physicians, critical care physicians, internists, rheumatologists, nephrologists, cardiologists, respirologists, nurses, physiotherapists, occupational therapists, […]
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Canada’s Drug Agency 2024 Symposium: From Disruption to Opportunity: Embracing Change in Health Care
Shaw Centre Ottawa, Ontario, CanadaSymposium 2024 will delve into the strategies, technologies, and best practices that can help HTA providers and health care decision-makers navigate disruption and unlock new opportunities, including appropriate use of […]
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Scientific Advancements in Gene Therapies: Opportunities for Global Regulatory Convergence
The Reagan-Udall Foundation for the FDA, in collaboration with the Bill & Melinda Gates Foundation, will host a hybrid public workshop on "Scientific Advancements in Gene Therapies: Opportunities for Global […]
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CANPKU+ 2024 ANNUAL GENERAL MEETING
Please note only those who are current members will have the availability to vote at the upcoming AGM. Please check your profile to see if your membership is current. Not […]
Share your Event
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HERE!