Events

Name: Summit 2025: Ending The Diagnostic Odyssey
Start: 2025-04-28T08:00:00+00:00
End: 2025-04-30T17:00:00+00:00
Location: washington

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.

Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.

Conferences

February 2025
February 24 @ 8:00 am - February 26 @ 5:00 pm

2025 Clinical Trials Training Summit
March 2025
March 5 @ 8:00 am - March 7 @ 5:00 pm

RE(ACT) Congress and IRDiRC Conference

Brussels, Belgium Brussels, Belgium

The RE(ACT) Congress and IRDiRC Conference 2025, held jointly by the BLACKSWAN Foundation, the International Rare Diseases Research Consortium (IRDiRC) and the European Rare Diseases Research Alliance (ERDERA). From March […]
March 12 @ 8:00 am - March 13 @ 5:00 pm

Empowering Patients 2025: A Cell and Gene Therapies Summit

This free, virtual event in two half-day sessions offers educational discussions for foundation leaders, patients, and caregivers to better understand #GeneTherapy and #CellTherapy.
March 16 @ 8:00 am - March 19 @ 5:00 pm

MDA Clinical and Scientific Conference
March 23 @ 8:00 am - March 26 @ 5:00 pm

13th ISNS European Regional Meeting Luxembourg

Newborn Screening LIVE from the Heart of Europe
March 29 @ 8:00 am - 1:30 pm

Vancouver Patient Education Meeting – IN-PERSON
April 2025
April 7 @ 8:00 am - April 8 @ 5:00 pm

Conscience Symposium on Open Drug Discovery
April 8 @ 8:00 am - April 10 @ 5:00 pm

13th ISSAID Meeting

paris Paris, France

13th Meeting of the International Society of Systemic Autoinflammatory Diseases (ISSAID), which will take place in Paris from April 8th to 10th, 2025, at the “Cité Internationale” - a magnificent […]
April 10 @ 8:00 am - April 11 @ 5:00 pm

RareKids-CAN Annual Conference

The mission of the RareKids-CAN: Pediatric Rare Disease Clinical Trials and Treatment Network Strategic Planning Conference is to collaboratively shape the future of pediatric rare disease research and clinical trial […]
April 24 @ 8:00 am - April 25 @ 5:00 pm

Neuropsychiatry & Mental Health 2025

Theme: Innovations in Neuropsychiatry and Evolution in Medicines of Neurological Disorders for Better Mental Health.
April 27 @ 8:00 am - April 29 @ 5:00 pm

Mitochondrial Transplantation and Next Generation Therapeutics Conference

Join Northwell Health on April 27-29, 2025, at Hofstra University on Long Island (NY) for a unique forum for the presentation and discussion of new research developments in mitochondrial transfer […]
April 28 @ 8:00 am - April 30 @ 5:00 pm

Summit 2025: Ending The Diagnostic Odyssey

washington WA, United States

A first-of-its kind collaborative event for Undiagnosed, Ultra-Rare & Rare disease industry, clinical and community leaders. The diagnostic odyssey for rare diseases is a significant challenge, often leaving patients and […]