CureDuchenne FUTURES National Conference
JW Marriott Orlando Orlando, FL, United StatesThe CureDuchenne FUTURES National Conference is an annual event focused on bringing education, connection, and hope to the entire Duchenne community.
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Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.Â
Conferences
Perinatal and Child Health Research Annual Meetings
Sheraton Wall Centre Vancouver, British Columbia, CanadaThe realm of perinatal child health research is undergoing a rapid transformation. To enhance the well-being of our children and families, it is imperative to foster collaborative research endeavors, facilitate […]
CMT Clinical Trial Readiness Summit
Loews Coronado Bay Resort San Diego, CA, United StatesAs new clinical trials emerge for Charcot-Marie-Tooth disease (CMT), the importance of optimizing measures, endpoints and the participant experience has never been more urgent! Hereditary Neuropathy Foundation (HNF) is committed […]
Brain-Heart Interconnectome State of the Science Summit
National Arts Centre Ottawa Ottawa, Ontario, CanadaThe Summit is an international conference set to highlight cutting-edge science at the crossroads of brain and heart health, showcasing innovation and state-of-the art research. Learn from international experts, leaders […]
Health Technology Assessment International Annual Meeting 2024
Barcelo Convetion Centre Seville, SpainHeld each year in June, the HTAi Annual Meeting is a key international gathering for sharing cutting-edge research, advancing discussions in policy and methods, and building global networks. Throughout the […]
IRSF Rett Syndrome Scientific Meeting
westminister Westminister, CO, United StatesPart of ASCEND 2024, the IRSF Rett Syndrome Scientific Meeting brings together scientists and researchers studying Rett syndrome and related areas from around the world. During this 2-day meeting, attendees […]
MitoMed Conference 2024
Hilton Cleveland Downtown Cleveland, OH, United StatesEach year, the United Mitochondrial Disease Foundation (UMDF)'s Mitochondrial Medicine Conference brings together the best minds in mitochondrial medicine and gives patients and families the opportunity to meet some of […]
6th Fibrodysplasia Ossificans Progressiva (FOP) Drug Development Forum
Elite Hotel Tower Marina Stockholm, SwedenThe Drug Development Forum (DDF) brings together biotech and pharmaceutical companies, academic researchers and clinician scientists to collaborate and advance Fibrodysplasia Ossificans Progressiva (FOP) research. It's an opportunity to discuss […]
IFPA Conference the 7th World Psoriasis & Psoriatic Arthritis Conference
Stockholm Waterfront Congress Centre Nils Ericsons Plan 4, Stockholm, SwedenEstablished in 2006, the IFPA Conference (also known as the World Psoriasis & Psoriatic Arthritis Conference) provides a unique, cross-specialty platform. Medical and health professionals present frontline clinical research in […]
North America Rare Diseases Summit 2024
Radisson Blu Aqua Hotel Chicago, IL, United StatesThis event brings together leading researchers, healthcare professionals, patient advocates, policymakers, industry experts, and rare disease patients and families. The summit emphasizes the power of collaboration and solidarity in facing […]
PRISMS Leads the Way To Support Those Living with Smith-Magenis Syndrome at 12th International Conference
Hyatt Regency Dallas Dallas, TX, United StatesPRISMS 12th International Conference is the largest conference specifically focused on Smith- Magenis Syndrome (SMS) in the world. The conference goal is to educate and share information about SMS while […]
Pediatric Inclusion Roundtable – Effective Inclusion of Children Early in Clinical Trials
Join Leavitt Partners, LLC, and Friedreich’s Ataxia Research Alliance (FARA) for the Pediatric Inclusion Roundtable: Effective Inclusion of Children Early in Clinical Trials. The program will engage all stakeholders regarding […]
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