12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Clinical Trials
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CureDuchenne 2025 FUTURES National Conference
This annual event is dedicated to providing education, connection, and hope to the entire Duchenne community.
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Advancing Innovation in Rare Disease Research
Join researchers, clinicians, and industry leaders to discuss real-world research breakthroughs, novel #ClinicalTrial designs, and how NORD's Rare Disease Centers of Excellence are leading collaborative efforts in #RareDisease innovation.
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Webinar – Key Considerations for Including Pediatric Populations with Neurodevelopmental Conditions in Clinical Trials
Speakers: Evdokia Anagnostou and Mayada Elsabbagh Title: Key considerations for including pediatric populations with neurodevelopmental conditions in clinical trials
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Defeat Duchenne Canada-Industry Partner Update: REGENXBIO
Join Defeat Duchenne Canada for an educational webinar featuring Dr. Jahannaz Dastgir, Executive Director of Clinical Development at REGENXBIO, as she shares the latest updates on RGX-202, an investigational gene […]
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THE FESTIVAL OF GENOMICS & BIODATA Boston
The Festival is designed principally for scientists and clinicians who are working in the fields of genomics, other omics, and/or using biodata , to further research, drug discovery, healthcare and – ultimately […]
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IMPaCT Webinar – An Overview of Current and Future Clinical Trials in Children: a European Perspective
Dr. Eva Degraeuwe (MD-PhD) is a dedicated pediatric resident and researcher in pediatric nephrology and global clinical trial optimilisation. Working in many Global networks focused on rare and low prevalance […]
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6th International Hypothalamic Hamartoma Symposium
Presented by Hope for HH and Hospital Sant Joan de Déu Barcelona, this symposium will gather leading experts, patients, and caregivers from around the world to share the latest research, […]
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Rare Trials Summit
Bringing together key stakeholders in the clinical research community to accelerate the development of new rare disease therapies from average 10-12 years to under 3 years.
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IMPaCT Webinar: Lessons Learned from the Innovative Pediatric Clinical Trials (iPCT) Network
Speakers: Tannis Erickson & Naveen Poonai Title: Lessons Learned from the Innovative Pediatric Clinical Trials (iPCT) Network
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2025 NMD4C Annual Meeting
Registration is now open for the 2025 NMD4C Annual Meeting! Join NMD4C in Ottawa on Thursday, September 11, for a full day of dynamic discussions, research updates, and networking opportunities—just […]
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HERE!