IPIC 2025
IPIC is one of the leading international congresses on primary immunodeficiency (PID) diagnosis and clinical care with a unique approach to its scientific programme underpinned by its focus on patient-centredness. […]
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Caregiver
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Bridging Gaps: A Patient-Oriented Neuroscience Research Symposium
Bringing together neuroscience researchers, patients, advocates and caregivers to highlight brain health research in an accessible format.
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Hope on the Horizon: Trials, Treatments and Therapies for DMD, DM1 & MG
Muscular Dystrophy Canada in partnership with the Neuromuscular Disease Network for Canada (NMD4C)’s Clinical Trial Network is excited to host three Hope on the Horizon events! These webinars are geared […]
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Introduction to the Disability Tax Credit
A presentation about the gateway tax credit and the benefits it unlocks: Learn how the credit works and who qualifies Learn how the credit unlocks other federal benefits Discover practical […]
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Can-Child Webinar: F-words Foundations Workshop
Interactive 3-hour F-words Foundations Workshop to explore how to bring the F-words for Child Development—Functioning, Family, Fitness, Fun, Friends, and Future—into everyday practice and life!
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SMA Together: Learn. Share. Connect. A Mini-Regional Conference – Toronto
The SMA Together: Learn. Share. Connect. Mini-regional conference in Toronto is less than three weeks away! Join them, in-person on December 13 to learn about the latest updates in spinal […]
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Rare Disease Internation-Moving the WHA Resolution on Rare Diseases Forward: From Promise to Action
Join RDI for this public webinar where they will discuss the current status of the WHA Resolution implementation, as they approach the World Health Organization Executive Board meeting taking place […]
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Sickle Cell Awareness Group of Ontario (SCAGO) Learning for Life – Clinical Trials 101 What Every Patient Should Know Before Enrolling
Considering a clinical trial? Join SCAGO for an informative virtual session designed to help patients and caregivers understand the process, benefits, and important considerations before enrolling.
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8th TREAT-NMD® International Conference – Lisbon, 2026
Join TREAT-NMD at this vital, in-person gathering where patients, clinicians, researchers, industry, and regulators come together to tackle the biggest challenges in neuromuscular treatment development, diagnosis and care. Topics will […]
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RealiseD Webinar 4: Enhancing patient-centricity in Rare Disease Clinical Trials
The final webinar focuses on what truly matters: the patient. Rare disease trials often struggle to capture outcomes that reflect patient priorities but RealiseD is working to change that. Rudradev […]
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RQMO 2026 International Rare Disease Day
On February 28th, from 10 a.m. to 4 p.m., we invite you to participate in the RQMO 2026 International Rare Disease Day. The event will be held in hybrid mode, […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!