People’s Perspectives: Living with Loeys-Dietz Syndrome
For the first time, the Loeys-Dietz Syndrome Foundation Canada and the Loeys-Dietz Syndrome Foundation – a division of the Marfan Foundation – are joining forces to bring you real talk […]
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Caregiver
Events
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PiPER Community of Practice: Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience
Save the date on *March 25th 2026* for a dynamic session entitled "Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience".
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Gene Therapy for IEI: It’s Taken Us So Long ‘Cause We’ve Got So Far To Come
Moderated by Dr. Jordan Orange, this important conversation will explore the progress, promise, and future of gene therapy for Inborn Errors of Immunity.
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MitoRevolution Research Symposium and Innovation Day
Researchers, clinicians, and trainees working in mitochondrial science are invited to attend the 6th Annual MitoRevolution Research Symposium and Innovation Day, hosted by their partners Mito2i, on Thursday, April 9, […]
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Ehlers-Danlos Syndrome (EDS) Research Symposium
The Ehlers-Danlos Syndrome (EDS) Research Symposium is a two-day event, April 9-10, designed to bring together clinicians, researchers, students, patients, and community partners to examine current research, clinical challenges, and […]
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Wilson Disease Association Spring Support Symposium
Join the WDA Spring Support Symposium in Ann Arbor, Michigan, on April 11, 2026, to hear directly from patients and a caregiver as they share their real-life stories.
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CHILD-BRIGHT Network EDI-DI Youth Empowerment Program Knowledge Mobilization Showcase
Over the past few weeks, youth from across Canada have come together to explore equity, diversity, inclusion, decolonization, and Indigenization in brain-based developmental disability research. Now, they are ready to […]
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Ontario Rare Action Group Information Meeting
Join the Ontario Rare Action Group information meeting April 21, 2026. They will be talking to you about what they've been up to the last month and how the community […]
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Innovative Financing for Rare Diseases
How can innovative financing approaches improve equitable access to diagnosis, treatment, and care for people living with rare diseases? Join RDI-International for a new webinar series bringing together health economists, policymakers, […]
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CORD: Rare Disease Day 2026 Conference
Join CORD for their Annual Rare Disease Day Conference in Toronto!
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International Drug Repurposing Conference 2026
Join the leading international drug repurposing conference to explore the future of patient-centric medicines repurposing. From rare diseases and AI-driven drug discovery, to policy, funding and community-led success stories, iDR26 […]
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Voices for Rare Advocacy Day
A day dedicated to bringing the voices of Ontario’s rare disease community directly to policymakers.
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!