Ehlers-Danlos Society ECHO Summit: Mental Health
The Ehlers-Danlos Society is delighted to welcome you to register for the EDS ECHO Summit: Mental Health, a virtual event held on November 1, 2025. This event is suitable for […]
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Caregiver
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Canadian Caregiving Summit 2025
A brighter future of care is possible. Following the release of A National Caregiving Strategy for Canada, the Canadian Caregiving Summit, hosted by the Azrieli Foundation’s Canadian Centre for Caregiving […]
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Screen4Rare: Making AI Diagnosis Understandable
A co-creation workshop inviting non-AI experts to help design communication tools such as videos and brochures that make AI-supported diagnosis more understandable, trustworthy and human.
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Webinar: Health Financing & Social Health Protection for Rare Diseases
Rare Diseases International (RDI) and the P4H Network have partnered to enable global advocacy and collaboration to influence and support innovation in health financing arrangement and social health protection that […]
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IPIC 2025
IPIC is one of the leading international congresses on primary immunodeficiency (PID) diagnosis and clinical care with a unique approach to its scientific programme underpinned by its focus on patient-centredness. […]
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Bridging Gaps: A Patient-Oriented Neuroscience Research Symposium
Bringing together neuroscience researchers, patients, advocates and caregivers to highlight brain health research in an accessible format.
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Hope on the Horizon: Trials, Treatments and Therapies for DMD, DM1 & MG
Muscular Dystrophy Canada in partnership with the Neuromuscular Disease Network for Canada (NMD4C)’s Clinical Trial Network is excited to host three Hope on the Horizon events! These webinars are geared […]
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Introduction to the Disability Tax Credit
A presentation about the gateway tax credit and the benefits it unlocks: Learn how the credit works and who qualifies Learn how the credit unlocks other federal benefits Discover practical […]
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Can-Child Webinar: F-words Foundations Workshop
Interactive 3-hour F-words Foundations Workshop to explore how to bring the F-words for Child Development—Functioning, Family, Fitness, Fun, Friends, and Future—into everyday practice and life!
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SMA Together: Learn. Share. Connect. A Mini-Regional Conference – Toronto
The SMA Together: Learn. Share. Connect. Mini-regional conference in Toronto is less than three weeks away! Join them, in-person on December 13 to learn about the latest updates in spinal […]
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8th TREAT-NMD® International Conference – Lisbon, 2026
Join TREAT-NMD at this vital, in-person gathering where patients, clinicians, researchers, industry, and regulators come together to tackle the biggest challenges in neuromuscular treatment development, diagnosis and care. Topics will […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!