12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Caregiver
Events
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ECRD: Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases
The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe. By bringing together people with rare diseases and patient advocates, policy makers, healthcare industry representatives, clinicians, regulators and Member State representatives, EURORDIS […]
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Rare Diseases International-Innovative Models Reshaping Access to Diagnosis, Treatment and Care – Practical examples and global case studies
Scientific and medical advances in rare diseases continue to accelerate — but equitable access to diagnosis, treatment, and care remains out of reach for millions of people living with a […]
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4th Edition of the Sickle Cell Awareness Day Education Conference
The Sickle Cell Disease Association of Canada (SCDAC), in partnership with the Interdisciplinary Centre for Black Health (ICBH), is bringing the sickle cell community together at the University of Ottawa […]
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RareKids-CAN: Kids Rare Disorders Awareness: Supporting Early Recognition & Families in Nova Scotia
Join RareKids-CAN Clinical Trial Navigator Ameen Abdelmajid of the IWK Health for a series of community information sessions in partnership with Halifax Public Libraries. These free sessions are designed for […]
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Dysautonomia International: Piece by Piece: Building the Future of Dysautonomia Care
Join Dysautonomia International in Houston, Texas, July 9–12, 2026 for the 14th Annual Dysautonomia International Conference, the world’s largest conference on autonomic disorders.
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IMPaCT Webinar: Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials
Register today for IMPaCT's next webinar with Ami Baba, PhD, where she'll discuss Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials. ✅ Identify who needs trial reporting […]
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CORD Webinar: The Cost of Waiting: Socioeconomic Impact of Rare Disease in Canada
CORD is pleased to invite you to our upcoming webinar, The Cost of Waiting: Socioeconomic Impact of Rare Disease in Canada . Join patients, caregivers, clinicians, researchers, policy makers and […]
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Kabuki Syndrome Foundation Live Webinar: Together for Progress
Join the Kabuki Syndrome Foundation at their upcoming live webinar, Together for Progress, on July 16, 2026. You can look forward to the latest updates on treatment development, learn about […]
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HERE!