Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
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From policy to patient: can Canada close the rare disease delivery gap? Join CORD’s Next Generation Rare Canada 2026 conference for a keynote from Josie Godfrey, Co-Lead Investigator & Policy for the 2026 RareCare Evaluation of England’s Rare Diseases Action Plans. |
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The fourth Canadian Symposium on Lysosomal Diseases focuses on advances in disease mechanisms, diagnosis, and management of lysosomal storage disorders, including Gaucher disease, Fabry disease, Pompe disease, and Niemann-Pick disease. |
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Join Defeat Duchenne Canada for a 60-minute virtual session bringing together leading voices in gene therapy for Duchenne, sponsored by REGENXBIO, Roche Canada, and Solid Biosciences. Together with patient voices and clinical expertise, they’ll help translate complex science into clear, practical information you can use. |
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The Canadian Association for the Study of the Liver (CASL), in partnership with the Canadian Network for Autoimmune Liver Disease (CaNAL), is hosting a national webinar focused on autoimmune and rare liver diseases. The session features Dr. Aldo Montano-Loza of the University of Alberta and Dr. Gideon M. Hirschfield of Toronto General Hospital's Autoimmune and […] |
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Join other parents, caregivers, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. You’re welcome for all or some of our hour together. Reach out to Sara at rkengage@mcmaster.ca for any questions. |
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The MITO2026 International Conference, organized by MITO2i and MitoCanada, brings together people working across the mitochondrial disease research community. Mitochondrial disorders can affect multiple organs and systems and include many rare genetic conditions. |
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Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!
