Research as Care: Why Rare Diseases Matter for Europe’s Future
More than 30 million people across Europe live with a rare disease. This event explores how research and innovation can become the standard of care for all rare diseases — […]
Rare Disease Expertise, Centers & Networks: Results of the Public Survey
This is a Public Webinar presenting the results of RDI Survey on rare disease expertise, care-providing centers and networks. This survey aimed to map the global landscape of rare disease expertise, […]