ERDERA:Diagnostic Research Workstream – Session 2: Data Sharing, Data Management & Ethics
This webinar gives an overview of the ERDERA Diagnostic Research Workstream’s data sharing framework, covering the Data Sharing Framework Agreement, ethical/governance requirements, and the data submission process via GPAP/Phenostore and […]
Pan-Canadian OMOP Common Data Model Engagement Event
This pan-Canadian event brings together teams using the OMOP common data model to advance research collaboration across Canada and beyond.
Webinar: Rare Barometer survey on the impact of rare diseases on everyday life
On Wednesday 10 July, Rare Barometer, the global survey initiative of EURORDIS – Rare Diseases Europe, will launch a new survey on the impact of rare diseases on everyday life. The […]
International Conference on Newborn Screening 2024
The 2024 meeting of the International Consortium on Newborn Sequencing (ICoNS) will be held in New York City, USA on October 9 – 10, 2024. ICoNS is the premier event for […]
ALS Clinical Trials Unboxed
On Thursday, July 4, at 1 p.m. ET, join ALS Canada for our next ALS Clinical Trials Unboxed webinar to learn more about ongoing ALS clinical trials. In this webinar, Dr. […]
4th Annual Symposium for Researchers and Clinicians on Wiskott Aldrich Syndrome
The fourth international symposium for researchers and clinicians on Wiskott Aldrich Syndrome is being held in Milan, Italy and offers access to the latest research and analysis related to this […]
End-user Training for the EJP RD Virtual Platform
EJP RD – European Joint Programme on Rare Diseases – End-user Training for the EJP RD Virtual Platform This training is intended for potential users of the Virtual Platform (VP) that is […]
Is this okay? Community attitudes on using health data in research in Canada and Australia: A cross-cultural exchange
The access and use of health data for research raises concerns related to privacy, commercial motives, equity and fairness for members of the public who want to know who is […]
Accessing Data through DASH: CanPath & HDRN Canada Partnership
Are you a researcher seeking data from Canada’s largest population study – the Canadian Partnership for Tomorrow’s Health (CanPath)? HDRN Canada’s Data Access Support Hub (DASH) offers coordinated services to […]
Global Alliance for Genomics and Health – 12th Plenary
GA4GH 12th Plenary brings together organisations and initiatives from the genomics and health community for keynotes, talks, and workshops. The conference will focus on genomic and clinical data sharing issues […]