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Events

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.

Watch our walkthrough videos in English and French for guidance navigating the calendar HERE. 

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Canada’s Drug Agency 2024 Symposium: From Disruption to Opportunity: Embracing Change in Health Care

Shaw Centre Ottawa, Ontario, Canada

Symposium 2024 will delve into the strategies, technologies, and best practices that can help HTA providers and health care decision-makers navigate disruption and unlock new opportunities, including appropriate use of health technology. Discover how embracing change can lead to innovative HTA methods, greater equity, enhanced patient care, and more effective use of data and analytics. […]

Designing effectiveness-implementation hybrid trials in child health research

The webinar will introduce effectiveness-hybrid designs, showcase examples, and outline important considerations for conducting these types of studies. It will also briefly summarize tensions that may occur in conducting implementation research and mention tools to support implementation planning and execution.

CANPKU+ 2024 ANNUAL GENERAL MEETING

Please note only those who are current members will have the availability to vote at the upcoming AGM. Please check your profile to see if your membership is current. Not current? Sign up to become a member or renew your membership at www.canpku.org/membership

Webinar – Clinical trials across the lifespan: Considerations for trials with pregnant people and children

Webinar objectives: 1. Identify reasons why more clinical trials should include children and pregnant people 2. Describe additional considerations for designing, operating, and communicating about clinical trials with pregnant people and children 3. Discuss opportunities and challenges for considering clinical trials across the life span with IMPaCT and PregTrials

CHAEN / International Guideline Conference

Hilton Hotel Toronto Toronto, Ontario, Canada

The Canadian Hereditary Angioedema Network (CHAEN) is an organization of physicians who treat and/or are interested in Hereditary Angioedema. CHAEN is incorporated under the Canada Not-For-Profit Corporations Act. CHAEN unites physicians committed to ensuring all HAE patients in Canada have access to excellent care that reflects current management and treatment guidelines, and works to promote […]

4th International Symposium on Arthrogryposis

The International Symposium on Arthrogryposis provides a platform for learning and exchanging on the clinical management and research in Arthrogryposis Multiplex Congenita (AMC) in the areas of genetics, orthopedics, and rehabilitation. Multisite collaborations are key to advance research initiatives and standardize practice across centers.

4th Regional Meeting on ITP – PDSA Canada

The Courtyard Marriott Burlington Burlington, Ontario, Canada

On September 29, 2024, the 4th annual Canadian Regional Meeting will take place in Burlington, ON, for patients and families affected by ITP. The event will be held at the Courtyard Marriot. This meeting is a chance to meet other Canadian ITP patients and learn from Canadian ITP experts. If you are interested in registering […]

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National Day for Truth and Reconciliation

Each year, September 30 marks the National Day for Truth and Reconciliation. The day honours the children who never returned home and Survivors of residential schools, as well as their families and communities. Public commemoration of the tragic and painful history and ongoing impacts of residential schools is a vital component of the reconciliation process. […]

Update on treatment in Pompe disease

Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to a webinar on treatment updates in Pompe disease. This case-based rounds webinar is for Canadian clinicians, academics, and trainees with an interest in neuromuscular disease.

The 4th Annual Canadian Children, Youth and Communities (CCYC) Health In | Equity Conference

The Canadian Children, Youth and Communities (CCYC) In | Equity Conference is an interdisciplinary conference designed to bring together pediatric health and allied health care professionals to address health care inequities from birth to adolescence using a family-centred approach. This conference explores health equity topics specific to marginalized communities in the Canadian health care system […]

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CRDN Townhall – An Update on the Co-Development of our Strategic Plan

Join the Canadian Rare Disease Network (CRDN) - Réseau Canadien des Maladies Rares - for a dynamic townhall to engage with thought leaders, experts, and the rare disease community as we explore and shape the future of rare disease care and research in Canada. This townhall will provide an overview of the CRDN and its […]

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