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Events

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.

Watch our walkthrough videos in English and French for guidance navigating the calendar HERE. 

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IFPA Conference the 7th World Psoriasis & Psoriatic Arthritis Conference

Stockholm Waterfront Congress Centre Nils Ericsons Plan 4, Stockholm, Sweden

Established in 2006, the IFPA Conference (also known as the World Psoriasis & Psoriatic Arthritis Conference) provides a unique, cross-specialty platform. Medical and health professionals present frontline clinical research in dermatology, rheumatology and beyond. Delegates can explore psoriatic disease from different perspectives by networking with patients and industry representatives in attendance. The IFPA conference calls […]

The Global Cell & Gene Therapy Summit

Boston Marriott Newton Hotel Boston, MA, United States

Cell and gene therapy represent intersecting fields of biomedical research with the shared goal of treating, preventing, or curing diseases. These approaches are aimed at understanding the underlying causes of various diseases, ranging from rare and complex conditions to those with genetic or acquired origins. This rapidly expanding treatment approach is poised to address significant […]

North America Rare Diseases Summit 2024

Radisson Blu Aqua Hotel Chicago, IL, United States

This event brings together leading researchers, healthcare professionals, patient advocates, policymakers, industry experts, and rare disease patients and families. The summit emphasizes the power of collaboration and solidarity in facing rare diseases.

Canada’s Drug Agency 2024 Symposium: From Disruption to Opportunity: Embracing Change in Health Care

Shaw Centre Ottawa, Ontario, Canada

Symposium 2024 will delve into the strategies, technologies, and best practices that can help HTA providers and health care decision-makers navigate disruption and unlock new opportunities, including appropriate use of health technology. Discover how embracing change can lead to innovative HTA methods, greater equity, enhanced patient care, and more effective use of data and analytics. […]

Scientific Advancements in Gene Therapies: Opportunities for Global Regulatory Convergence

The Reagan-Udall Foundation for the FDA, in collaboration with the Bill & Melinda Gates Foundation, will host a hybrid public workshop on "Scientific Advancements in Gene Therapies: Opportunities for Global Regulatory Convergence." Gene therapies work by replacing, silencing, and/or modifying specific genes within a cell to treat, prevent, or cure a disease, and have been […]

C-Path 2024 Global Impact Conference

Attendees of the 3-day conference, including patients, providers, researchers, clinicians, biopharmaceutical companies, regulatory reviewers and scientists, will leave with knowledge of: Accelerating drug development across neurology, rare diseases, pediatrics, and beyond. Integrating insights across therapeutic areas to advance the process for novel treatments and cures. The power of every precious data point in rare and […]

Global Alliance for Genomics and Health – 12th Plenary

Park Hyatt Melbourne Melbourne, Australia

GA4GH 12th Plenary brings together organisations and initiatives from the genomics and health community for keynotes, talks, and workshops. The conference will focus on genomic and clinical data sharing issues that pervade diverse industries, disciplines, and communities.

EMPOWER & INSPIRE 3RD ANNUAL LEIGH SYNDROME SYMPOSIUM

Empower & Inspire: Understanding and Accelerating Research for Leigh Syndrome Tuesday, September 17, 2024 Brought to you by: ​Cure Mito Foundation & integrative Cardiovascular Metabolism and Pathophysiology Laboratory (iCaMP) at Boston University For details please visit curemito.org/conference  

Week in RARE: RARE Advocacy Summit and Health Equity Forum

Kansas City Kansas City, MO, United States

Global Genes is on the move — Week in RARE is moving to Kansas City, Missouri in 2024. Week in RARE combines the RARE Health Equity Forum and RARE Advocacy Summit, in addition to the RARE Champions of Hope awards ceremony and annual membership meetings for Global Advocacy Alliance and RARE Corporate Alliance. This is […]

North American Cystic Fibrosis Conference

Boston Convention and Exhibition Center Boston, MA, United States

NACFC provides a collaborative and educational forum for all CF professionals. The educational elements of the meeting program are targeted to physicians, nurses, research scientists, respiratory therapists, physical therapists, nutritionists, social workers, and pharmacists. This annual meeting brings together scientists, clinicians, and caregivers from around the world to discuss and share ideas on the latest […]

World Orphan Drug Congress 2024

Fira de Barcelona Montjuic Barcelona, Spain

The World Orphan Drug Congress is the largest, most established European meeting dedicated to orphan drugs. This year the conference will take place in Barcelona, Spain. From cell & gene therapy, genetic testing, market access to real world evidence, this one meeting covers the whole orphan drugs value chain where science, government and manufacturers all […]

Clinical Trials Ontario Conference

Hilton, Toronto Toronto, Ontario, Canada

The CTO Clinical Trials Conference is a leading Canadian forum to drive innovation in clinical trials, including leaders from the pharmaceutical and medical device industries, academic and healthcare leaders, representatives from patient groups, health charities and research institutions. This annual event provides a unique opportunity for members of our multi-stakeholder sector to collaborate, exchange knowledge […]

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