Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
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RITA Patient-Centered: Social rights of a person with a rare disease and the patient perspective in advocacy, the case of Malta
June 26 @ 10:00 am - 11:00 am
The new ERN RITA Patient-Centered Webinar Series is made by the Education Working Group with patients advocates active in the ERN RITA and focuses on the unique needs and challenges faced by immunological rare disease patients and their caregivers.
For this next session, they will have Raquel Castro, Social Policy and Initiatives Director at EURORDIS-Rare Diseases Europe, and Sina Bugeja, Health Promotion Specialist and lecturer at the University of Malta in two presentations:
- Access to social rights: barriers, key issues and how can you take part to an upcoming Rare Barometer survey.
- The patient perspective in advocacy: the case of Malta. How to put rare diseases on the European agenda? How can an advocacy committee reach out to MEPs to seek their endorsement?
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HERE!