Become a Member

The Canadian Rare Disease Network (CRDN) is an open and inclusive network. We are keen to hear from representatives of organizations, networks, initiatives or institutes with a special interest in rare diseases from across the country and who are interested in contributing to collaborative efforts within the CRDN. We encourage organizations from non- or under-represented geographies and/or disease groups to join due to the critical importance for the CRDN to be representative of the entire Canadian rare disease community.

It is free to join the network and you can submit your Expression of Interest for membership using the form below.

Expression of Interest for Membership Form

Thank you for expressing your interest in becoming a member of the CRDN. Please complete the following form to help us understand your organization, network, or initiative better. This information will help us assess alignment with CRDN’s objectives and facilitate effective collaboration within our network.

Organization / Initiative Name:

Type of Organization / Initiative:

If type of organization is other, please specify:

If your organization/network/initiative is disease-specific, please specify:

Please list any university, hospital, research institution or disease network affiliations:

Organization Mailing Address (Address, Province, City, Postal Code):

Organization Email Address:

Organization Website URL:

Primary Representative Name:

Position/Role:

Primary Affiliation:

Secondary or Additional Affiliations:

Representative Email Address:

Area of Expertise or Interest in Rare Disease:

Please provide a brief description of your Organization / Initiative:

Why is your Organization/Initiative interested in joining the CRDN?

How do you envision your Organization/Initiative contributing to the CRDN?

Please provide any additional comments or information you would like to provide:

Become a Member

Expression of Interest for Membership Form

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