CRDN News
CRDN and RareKids-CAN co-host pre-clinical therapy development workshop
CRDN joined leaders from across Canada at the RareKids-CAN Conference and co-hosted a mini workshop on pre-clinical therapy development.
April 10, 2025
News related to rare disease, including patient stories, new programs and initiatives, and more.
Novel genes linked to rare childhood diarrhea
SickKids research provides a genetic diagnosis to more families experiencing rare intestinal disorders.
April 2, 2025
D2R awards $10 million to accelerate RNA-based therapies for rare diseases and cancer
McGill University’s DNA to RNA Initiative (D2R) has awarded over $10 million to support three pioneering RNA-based research projects aimed at advancing therapies for rare genetic diseases and cancers.
March 22, 2025
Rare Disease News
Government of Canada signs bilateral agreement with Quebec for Drugs for Rare Diseases
The Government of Canada and Québec have announced a $305 million agreement to improve access to new and existing drugs, support early diagnosis and screening, and advance Québec’s Action Plan on Rare Diseases 2023-2027.
March 21, 2025
Rare Disease News
Government of Canada signs bilateral agreement with Nunavut for Drugs for Rare Diseases
The Honourable Mark Holland, Canada’s Minister of Health, and the Honourable John Main, Nunavut’s Minister of Health, announced a bilateral agreement investing over $7.3 million over three years to improve access to selected new drugs for rare diseases, and to support enhanced access to existing drugs, early diagnosis, and screening.
March 13, 2025
Rare Disease News
Government of Canada signs bilateral agreement with Northwest Territories for Drugs for Rare Diseases
The Honourable Mark Holland, Canada’s Minister of Health, and the Honourable Lesa Semmler, Northwest Territories’ Minister of Health and Social Services, announced a bilateral agreement investing over $7.8 million to improve access to selected new drugs for rare diseases, and to support enhanced access to existing drugs, early diagnosis, and screening.
March 13, 2025
Stay updated with the latest developments and events from the CRDN as we advance rare disease research and care across Canada.