RQMO: 5th Zebinary of the Month of Zebra 2026
Speakers: - Christine Yergeau, Msc, RARE Network Manager. QC - Lilit Antonyan, Research Pillars Coordinator at RARe.qc
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Events
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Cassie&Friends: Rare Talks-When Answers Take Time: Real Lives, Rare Disease, and Support That Matters
Held during Rare Disease Month, this annual virtual event brings together families, youth, and the broader childhood rheumatic disease community to make rare experiences visible—and to remind families that they are […]
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RQMO: 6th Zebinary of the Month of Zebra 2026
Speaker: - Josée Chénard, TS, PH.d, Professor, Department of Social Work, Université du Québec en Outaouais
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Canada’s Drug Agency: How Global Policy Changes Are Reshaping HTA for Rare Diseases
HTAi’s Rare Disease Interest Group will celebrate 2026 Rare Disease Day with a conversation on how global policy changes are reshaping HTA processes for rare disease technologies. The webinar aims […]
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Rare Disease Day 2026: Advancing the Rare Brain Disease Ecosystem
Placing brain health at the core of rare brain disease prevention and management, this event gathers multidisciplinary experts from research, clinical care, patient advocacy, and industry to share perspectives and […]
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RQMO: 7th Zebinary of the Month of Zebra 2026
Speakers: - Kim Auclair, consultant, speaker and blogger - Elsie Côté, Founder and President of Sirote-moi
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PhenoTips: Matchmaking for Rare Disease Diagnosis
Matchmaking for Rare Disease Diagnosis is a panel discussion and interactive Q&A with patient matchmaking pioneers, Dr. Nara Sobreira, Matthew Osmond, CGC, and Dr. Orion Buske.
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RQMO: Last Zebinary of the Month of Zebra 2026
Speaker: - François Bernier, entrepreneur, strategist, co-founder of Horizon b2b
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CORD Rare Disease Day 2026 Webinar
ACCELERATED ACCESS TODAY, DEMONSTRATING VALUE FOR 2026 AND BEYOND This Rare Disease Day, join CORD for a 1-hour webinar marking the first 1.5 years of Canada’s Rare Disease Drug Strategy […]
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Massey College: Rare Disease Day
This Rare Disease Day, Massey College is the Massey community to join us for a special Fireside Chat on an issue that touches more lives than many realize. Lindy Forte, […]
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RQMO 2026 International Rare Disease Day
On February 28th, from 10 a.m. to 4 p.m., we invite you to participate in the RQMO 2026 International Rare Disease Day. The event will be held in hybrid mode, […]
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EP PerMed Hackathon
This is your chance to be a part of an immersive event at the forefront of innovation in personalised medicine. Join ER PerMed and work together with experts, innovators, and […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!