12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
International
From Grassroots to Global: Growing Momentum Towards a WHA Resolution on Rare Diseases
Join RDI for a webinar on the global movement behind the efforts to advocate for a WHA Resolution on Rare Diseases
Rare Disease Day
Rare Disease Day is the globally coordinated movement on rare diseases, initiated in 2008 and led by EURORDIS and its 70+ national alliance patient organization partners working towards equity in social opportunity, healthcare, and access to therapies for people living with a rare disease. Rare Disease Day is held on the last day of February, […]
Celebrate Rare Disease Day: Advancing Clinical Trials Together
On February 28th, in recognition of Rare Disease Day, the European project DREAMS (www.dreamshorizon.eu) invites you to a thought-provoking online webinar: "Clinical Trials in Focus: Innovations and Patient Perspectives in Rare Diseases". Join leading experts as they explore advancements in clinical trial methodologies, outcome measures, and lessons learned from research in muscular disorders.
RE(ACT) Congress and IRDiRC Conference
Brussels, Belgium Brussels, BelgiumThe RE(ACT) Congress and IRDiRC Conference 2025, held jointly by the BLACKSWAN Foundation, the International Rare Diseases Research Consortium (IRDiRC) and the European Rare Diseases Research Alliance (ERDERA). From March 5th to 7th, 2025, we will gather in the vibrant city of Brussels (Belgium) for an unparalleled exchange of knowledge and ideas. The RE(ACT) Congress […]
Empowering Patients 2025: A Cell and Gene Therapies Summit
This free, virtual event in two half-day sessions offers educational discussions for foundation leaders, patients, and caregivers to better understand #GeneTherapy and #CellTherapy.
13th ISNS European Regional Meeting Luxembourg
Newborn Screening LIVE from the Heart of Europe
13th ISSAID Meeting
paris Paris, France13th Meeting of the International Society of Systemic Autoinflammatory Diseases (ISSAID), which will take place in Paris from April 8th to 10th, 2025, at the “Cité Internationale” - a magnificent haven of peace near many transport amenities where you will particularly enjoy the sumptuous Honorat lounge overlooking a lush green park. April in Paris offers […]
Neuropsychiatry & Mental Health 2025
Theme: Innovations in Neuropsychiatry and Evolution in Medicines of Neurological Disorders for Better Mental Health.
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