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SUMMARY:'Neuro-opthalmological presentations of ataxia and other rare neurological disorders' by Tatiana Brémovà-Ertl
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/neuro-opthalmological-presentations-of-ataxia-and-other-rare-neurological-disorders-by-tatiana-bremova-ertl/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/06/8f22890e-e95f-4472-bce2-c61975661dd0.png
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DTSTART;TZID=America/Edmonton:20260618T060000
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DTSTAMP:20260609T104350
CREATED:20260527T160853Z
LAST-MODIFIED:20260527T195114Z
UID:10694-1781762400-1781766000@canadianrdn.ca
SUMMARY:Rare Diseases International-Innovative Models Reshaping Access to Diagnosis\, Treatment and Care - Practical examples and global case studies
DESCRIPTION:Scientific and medical advances in rare diseases continue to accelerate — but equitable access to diagnosis\, treatment\, and care remains out of reach for millions of people living with a rare disease. \nThis webinar offers a practical look at how innovative financing models can help close these gaps. The session will explore a range of financing mechanisms\, including venture philanthropy\, blended finance\, public-private partnerships\, solidarity funds\, and outcome-based models. Through real-world examples\, participants will gain insight into what makes these approaches work\, the conditions needed for success\, and how models can be adapted or combined across different health systems.
URL:https://canadianrdn.ca/event/rare-diseases-internationa-innovative-models-reshaping-access-to-diagnosis-treatment-and-care-practical-examples-and-global-case-studies/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Policy,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1779876027736-1.jpg
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DTSTART;TZID=Europe/Paris:20260929T080000
DTEND;TZID=Europe/Paris:20261002T170000
DTSTAMP:20260609T104350
CREATED:20250812T194434Z
LAST-MODIFIED:20250812T194434Z
UID:8714-1790668800-1790960400@canadianrdn.ca
SUMMARY:17th International Symposium on Sjögren's Disease
DESCRIPTION:This prestigious event\, which brings together researchers\, physicians\, patients and experts from around the world to discuss the latest advancements in Sjögren’s disease.
URL:https://canadianrdn.ca/event/17th-international-symposium-on-sjogrens-disease/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
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